Our Staff
We are pleased to have a staff of dedicated individuals sharing our passion to provide assistance and education to our EDS Awareness member community:
Deanna Hamm
President & Co-Founder
Past Cleveland Support Group Leader
John-Ferman
Former President – Co-Founder 2011-2025
(We are very sorry to announce John passed in Nov, 2025)
Andrea Julian
Board Member
Secretary – Dayton & Support Group Leader
Jonathan Rodis
Board Member
Founder and Co-leader-Ehlers-Danlos New England Support Group
Martha Riemenschneider
Board Member
Nursing Consultant
Dr. Pradeep Chopra
Medical Advisor
Board-Certified in Pain Medicine and Anesthesiology
Media Team
Since May 2021, our dedicated media team brings the latest EDS news to you via our Chronic Pain Partners Post, a monthly newsletter featuring original content by and for the EDS community.
Jacqueline Teti
Editor-in-Chief & Director of Programs
Donna Sullivan
Educational Outreach & Webinar Coordinator
Tayler Goectau
Writer
Clinical Research Coordinator, Norris Lab & Disability Advocate
Amy Weintraub
Science Writer
Research Specialist, Norris Lab
Hailee Munno
Writing Intern, Summer 2026
Jan Groh
Social Media Coordinator
Karina Sturm
Former Editor-in-Chief 2019-2026
Regular Guest Authors & Past Volunteer Writers
Susan Jackson
Volunteer Writer
Crystal Sullivan
Volunteer Writer
Jackie Saa
Volunteer Writer
Beth Miller
Volunteer Writer
Sarah Cook
Volunteer Writer
Christie Cox
Volunteer Writer
Upcoming
Webinars Schedule
Webinars
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