Neuro EDS: From Clinical Phenotypes to Mechanism-Based Diagnostics & Treatment

EDS Awareness free online webinar: “Neuro-EDS: From Clinical Phenotypes to Mechanism-Based Diagnosis & Treatment,” featuring Allison R. Bloom, MD, and Paolo Bolognese, MD, of the Mount Sinai Center for Neuro-EDS and Craniospinal Disorders, Mount Sinai South Nassau, Icahn School of Medicine. Thursday, November 5, at 7 p.m. EST, with Q&A. Registration link in bio. Blue and orange graphic includes portraits of both speakers and a Neuro-EDS book cover.


Click HERE to Register!

About This FREE Webinar

Allison Bloom MD and Paolo A. Bolognese, MD present Neuro-EDS: a proposed framework for recognizing conditions like craniocervical instability, tethered cord syndrome, CSF leaks, dysautonomia and mast cell activation as connected patterns rather than isolated problems.

This 2026 position paper (co-authored by Paolo Bolognese, Allison R. Bloom, Ilene S. Ruhoy, Randall A. Dass, Amanda Lerner, and Petra M. Klinge) aims to support earlier recognition, better coordinated care and future research.

The concept is new and still undergoing peer review, but the physicians behind it have been pioneers treating neuro complexity and EDS which makes this an important conversation for clinicians, researchers, patients and families.

You can read more about their concept paper here.

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