Posted on July 7, 2016
Thank you so much for doing the EDS Awareness World-Wide Survey! Very interesting results. I am an EDS patient advocate in Sweden and I wonder if it would be possible to get an extract of the Swedish participant´s survey results? We have for a long time been thinking of doing a similar survey in Sweden, […]
Posted on July 6, 2016
Deanna, Thanks again for this valuable info and absolute and much credit to you for the wonderful work you do on behalf of so many of us. It’s appreciated and then some 🙂 Kindest Regards….and gentle hugs! I love that saying – I’d never heard that before you said it 🙂
Posted on July 6, 2016
I cannot thank you enough for your generosity and kindness in providing these presentations. I have learned so much, and they have improved my life so much. As somebody who is housebound in Alaska, I have no idea where I would get some of these solutions if it weren’t for your great presentations. Thank you, […]
Posted on July 6, 2016
Thank you so much, again, to Deanna, John and all at EDS Awareness for the resources and support you provide. Your organization, along with a couple of others, give us hope as my son’s health continues to decline and we receive so few answers elsewhere. There really are no words to describe how much “a lifeline” […]
Posted on July 6, 2016
I wanted to vote for you for that award the EDNF is giving out, but you weren’t on the list. IMO you do a staggering amount of work to help all of us. A simple ‘thank you’ hardly seems adequate – you deserve an award! 🙂 Please know how much I appreciate all that you […]
Posted on July 6, 2016
Deanna &John, thank you so much for all you do. Have you considered having a place for voluntary donations on your page? I don’t know if you are a not for profit, but many people, including my family, greatly appreciate your efforts and would like to help support them. Thank you for all you do.
Posted on July 6, 2016
Thank you for your website. It is very informative and makes a person with Ehlers-Danlos syndrome not feel so alone. Again thank you for all you do.
Posted on July 5, 2016
John and Deanna are amazing people with true dedication to help educate us all that are suffering with EDS. They recognized, so time back, that many couldn’t afford to get to the conferences. So, chose to give of their time and money to bring the knowledge to us right in our own homes by sharing […]
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