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Soft sketch-style illustration of an upright MRI machine with a dark-haired patient seated inside wearing MRI-safe clothing. A female MRI technologist stands beside the machine, speaking with the patient and adjusting the controls. The image depicts a weight-bearing upright MRI in a calm clinical setting.

Seeing the Spine in Motion: Exploring the Potential Benefits of Upright MRI in EDS

This article explores whether upright MRI may be a useful tool for evaluating EDS-related spinal instability. Understanding the limitations of standard MRI and what positional imaging could offer instead, may help patients, clinicians, researchers, advocates, and healthcare providers better navigate the complex neurosurgical landscape of EDS.   Why Supine MRI May Miss the Problem Cervical […]

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

Cerebral venous outflow disorders describes a spectrum of conditions related to issues with how fluid drains from the brain.Experts are observing a connection between connective tissue disorders (like hypermobile EDS) and cerebral venous outflow disorders. Cerebral venous outflow disorders can cause pressure headaches (that often worsen when lying flat), dizziness, pulsatile tinnitus (a rare vascular form of tinnitus), neck pain, tenderness at the base of skull, vision disturbances, ‘brain fog’, and cognitive dysfunction. Cerebral venous outflow disorder may look different when it presents in individuals with connective tissue disorders than in individuals without, creating diagnostic challenges.