mast cell activation syndrome

Pencil sketch of a woman in a T-shirt sitting in an armchair by a window, holding a mug and looking thoughtfully outside at a sunlit spring landscape. A lightweight throw blanket drapes across her lap, while a potted plant and candle sit on a small table nearby.

What’s the Point of Pursuing EDS Diagnosis?

Like many people, my hypermobile Ehlers-Danlos Syndrome (hEDS) was diagnosed after a steep and sudden decline in my health. I had been navigating fatigue, pain, and fogginess for years, but in April 2020, I became bedbound for months following an incident during a Zoom call where I began blacking out and twitching. I had been […]

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Research Round-Up, Edition Three

Welcome back to Research Round-up where we feature some of the latest developments in Ehlers-Danlos syndrome (EDS) research. Hitch up your horse, gather ‘round the campfire, and see what we have in store for you today. ICYMI: a possible blood test for hEDS? Cardiology“Longitudinal echocardiography in pediatric patients with hypermobile Ehlers-Danlos syndrome”Published in the American […]