Invisible Illness

A picture of a young girl with brown hair and a pink tie in her hair sitting at a table writing.

Parental Preparation for Securing Accommodations at K-12 School for Children with the Ehlers-Danlos Syndromes

Please note: the author is based in the United States, so these are resources available in the US. Check with your school or local government education office or website for processes available in your country. The Individuals with Disabilities Education Act (IDEA) is the law in the United States that ensures every child in public […]

A blurred image of a person running at the beach.

Unaccommodating Accommodations

I want to be okay. Some days I am. But some days, it feels like my words slosh about disjointed. My eyelids are heavy shades that won’t stay open. Pain suffuses every joint in my body, and the throbbing in my head makes it impossible to tolerate light or noise. Day-to-day is unpredictable, sometimes moment […]