Ehlers-Danlos Support Group Directory

A screenshot from an Instagram account showing a man with a blue hospital gown and a infusion next to him, looking proud at a screen on a wall that says

Mitch Martow on his EDS journey and the documentary Bend or Break

For our January Chronic Pain Partners Post, journalist Karina Sturm spoke with Mitch Martow, an EDS advocate from Toronto, Canada. Martow is best known for being the focus of the 2021 released Canadian EDS documentary Bend or Break. In this interview, you’ll get close to Martow and his humorous side while he shares how he […]

The Directory for EDS Support Groups

Watch the video tour of the EDSawareness.com site in 2012: EDSawareness.com celebrated its 2nd year anniversary in July 2014 by sponsoring a booth at the EDNF Learning Conference in Houston TX.   We have come a long way in just two short years!   This video shows the launching of  EDSawareness.com at the 2012 Cincinnati EDNF Learning Conference! We welcome Comments […]

EDS Support Group Directory in Development at www.EDSawareness.com

  www.EDSawareness.com launched its new online resource at the EDNF Learning Conference last week in Cincinnati, Ohio. “We had an overwhelming response”, says John Ferman, Founder. “My wife passed away in 2008 – never knowing EDS was the cause of 30 years of chronic pain.  This was the same year my daughter was diagnosed with […]