EDS book

A pair of Caucasian hands holds the book Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book. The cover of the book shows a watercolor painting of a young Caucasian girl wearing a teal shirt with a small stuffed animal zebra on her head. The background is a mix of soft pinks, purples, and blues.

Children’s Book about Ehlers-Danlos Published

It’s here! Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book by Pey Carter and their daughter Abigail Bailey hits the virtual shelves on January 23, 2024. Chronic Pain Partners has previously covered the details of the book–where the idea came from, how it took shape, the advocacy Pey does that is portrayed in the book, […]

An illustration of a girl with long reddish hair holding a zebra stuffed animal.

Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book

In May, we published an article about a new children’s book about EDS, invisible illness, and disability–Bendy Bones and Stretchy Skin: An EDS Story. In this book, a young girl named Abigail struggles with her Ehlers-Danlos Syndrome and the effect it has on her life. Some of Abigail’s  friends and classmates don’t understand why she […]

A young girl with a stuffed animal zebra on the right; an illustration of the girl on the right in watercolor style on the left.

Pey Carter and Daughter Abigail Speak About Their EDS Children’s Book 

Pey Carter, a public speaker and author from Eau Claire, WI, and their daughter, Abigail Bailey, have a children’s book about Ehlers-Danlos Syndrome in the works: Bendy Bones and Stretchy Skin: An Ehlers-Danlos Story. In addition, Pey just finished a Kickstarter for an Ehlers-Danlos coloring book and is working on a memoir of their own. […]