Donna Sullivan

Cover of the Ehlers-Danlos National Foundation 2013 Learning Conference welcome brochure. The cover reads "2013 Learning Conference" and lists the Rhode Island Convention Center and The Omni Providence in Providence, Rhode Island, with conference dates of August 1–3. A nighttime photograph of the Providence skyline appears at the bottom of the cover.

Ten Years and a Time Capsule: What Changed, What Didn’t, and What’s Next

July is a busy month in the Ehlers-Danlos world. The EDS Society’s Annual Global Learning Conference takes place in Allen, Texas, on July 24-26. It will feature a great lineup of esteemed physician speakers, patient organizations, advocates, and presentations covering this year’s theme: “Exploring Comorbidities in EDS & HSD.” It is also the Ten-Year Celebration of the founding of the Ehlers-Danlos […]

Collage featuring the documentary Complicated: the main film poster shows a silhouetted mother and child holding hands, alongside photos from screening events including a speaker presenting in a theater, attendees and families posing at screenings, and group photos from medical and advocacy conferences.

Why May is The Moment for “Complicated”

We didn’t plan it this way, but the release of our documentary film, Complicated, on Apple TV in May feels almost fated. Between Ehlers-Danlos Syndrome (EDS) Awareness Month and Mother’s Day, the timing reflects the very heart of this project that we started nine years ago. To see it come to fruition has been incredible, and I […]