Hypermobile Ehlers-Danlos syndrome (hEDS), and the closely related hypermobility spectrum disorders (HSD), are commonly thought of as conditions that primarily affect women. Walk into any EDS support group, online community, or clinic waiting room, and the overwhelming majority of people there will be female. But does that mean men are truly less affected, or does […]
If you’ve landed here, maybe you have been quietly researching traits of autism, looking up screening questionnaires, and wondering if you could be part of the recently reported 39% of autistic patients that have co-occurring Ehlers-Danlos Syndrome (EDS) and hypermobility spectrum disorder (HSD). Before I ever sat across from an evaluator, I spent months reading, […]
Previous editions of Research Round-Up: Three, Two, One Welcome to the latest edition of Research Round-Up! If you’ve missed previous editions and want to know what’s happening in the world of EDS research, click the links above. This month, we’re doing something a little different. Instead of individually discussing some recent research articles, we’re taking […]
Imagine waking up each day with a body that feels both familiar and unpredictable, where the simplest movements demand careful calculation, and even routine tasks like washing the dishes can hold hidden challenges and pain. This is the world of those living with Ehlers-Danlos Syndrome (EDS), a condition that intertwines with the very fabric of […]