Do you have a group in Erie, PA? I keep trying to find
out time and place but your information is from several years ago! If you don’t meet, your might find someone who will up date your information! It would help someone who feels helpless & hopeless that when you have a bone waved in front of you, you don’t spend time searching for facts that aren’t there. Thank You, Sorry about the attitude. This isn’t even a bad day, but not good either. Barb
I agree with the previous comment. I am not able to find any updated information on the Erie EDS support group page or Facebook group. I would love more information on this group and becoming an active member in my community to connect with others with EDS.
Hi Kailyn, unfortunately, we haven’t been able to update the support group pages due to staff shortage. But we hope to be able to do that soon. Best, Karina
Do you have a group in Erie, PA? I keep trying to find
out time and place but your information is from several years ago! If you don’t meet, your might find someone who will up date your information! It would help someone who feels helpless & hopeless that when you have a bone waved in front of you, you don’t spend time searching for facts that aren’t there. Thank You, Sorry about the attitude. This isn’t even a bad day, but not good either. Barb
Sent you an email
I agree with the previous comment. I am not able to find any updated information on the Erie EDS support group page or Facebook group. I would love more information on this group and becoming an active member in my community to connect with others with EDS.
Hi Kailyn, unfortunately, we haven’t been able to update the support group pages due to staff shortage. But we hope to be able to do that soon. Best, Karina