Welsh Teenager Describes Her EDS Pain
Phoebe Bruce helps spread EDS awareness by explaining her painful EDS symptoms to the media. Constant dislocations makes it difficult to cope with what should be simple and routine daily activities. The Huffington Post reports her story:
“The teenager from Wales has a rare genetic condition called Ehlers-Danlos syndrome which means the collagen in her body is too weak to hold her limbs in place.
According to the Flintshire Chronicle, Bruce once suffered 18 dislocations in one episode and experiences at least one dislocation every single day.
Bruce, who was diagnosed a few months after birth, inherited the condition from her father who has the same genetic disorder but in a much milder form.
The brave high schooler said she has learned to cope with her condition throughout the years.
In school, Bruce is helped by teaching assistants and she gets around in a wheelchair. The teenager has also learned to pop some of her limbs back into place.
“It’s really painful, but I just have to get on with things,” Bruce told the Mirror. “That’s what I do. Putting my limbs back in is quite hard to do, but I switch my brain off and don’t think about what I’m doing. Popping a dislocation back in hurts twice as much as when it comes out. I don’t know how I do it.”
Despite her pluck and perseverance, however, Bruce said that things have been getting much worse over the last few months — and she’s getting desperate to find a way to alleviate the agony.
“I don’t get frustrated, but it’s hard to put up with how it affects my life. I really need someone to come and help me soon,” she told the outlet.”
Bruce is thankful for the support and inspiration she receives from her father, who also has EDS.
Loading ...
I’m still learning from you, while I’m improving myself. I definitely liked reading everything that is posted on your website.Keep the posts coming. I loved it!
Throughout this great scheme of things you get an A with regard to effort and hard work.
Interesante post! Muchas gracias.
Thank you very much for the info.
Its like you read my mind! You appear to know so much about this, like you wrote the book in it or something. I think that you could do with a few pics to drive the message home a bit, but other than that, this is wonderful blog. A fantastic read. I’ll certainly be back.
Thank you for the good writeup. It in fact was a great account it.
Great post. Thanks a lot.
This is really interesting, You’re a very skilled blogger. I’ve joined your feed and look forward to seeking more of your great post. Also, I’ve shared your site in my social networks!
Best regards for helping out, superb information.
I was just seeking this information for a while. I got it in your web site.
I simply want to mention I am newbie to blogs and truly loved you’re page. Almost certainly I’m want to bookmark your website . You definitely come with very good articles. Thank you for sharing your blog.
I’m really impressed with your writing skills as well as with the layout on your blog. Is this a paid theme or did you customize it yourself? Either way keep up the nice quality writing, it’s rare to see a nice blog like this one nowadays..
Almost all of what you claim happens to be supprisingly accurate and it makes me wonder why I hadn’t looked at this in this light previously. Your piece truly did switch the light on for me as far as this specific subject matter goes.
I just want to say I am all new to blogs and seriously loved your web-site. More than likely I’m want to bookmark your website . You actually have terrific well written articles. Thanks for revealing your website.
That is the best blog for anybody who desires to find out about this topic. You understand so much its almost exhausting to argue with you (not that I truly would want…HaHa). You definitely put a new spin on a subject thats been written about for years. Great stuff, just nice!
I simply want to mention I am just newbie to blogs and definitely liked you’re website. Likely I’m likely to bookmark your blog post . You definitely come with amazing articles and reviews. Thanks for sharing your blog.
hello there and thank you for your info – I have certainly picked up something new from right here.
This is a great post, I think you should turn it into a 2 or 3 part series.
I’m extremely impressed with your writing skills as well as with the layout on your blog. Is this a paid theme or did you customize it yourself? Anyway keep up the excellent quality writing, it’s rare to see a great blog like this one nowadays..
That is really interesting, You’re an excessively professional blogger. I’ve joined your rss feed and look ahead to looking for extra of your fantastic post. Additionally, I have shared your website in my social networks
HoHo, this is a beauty! Appreciate it!
Regards for this post, I am a big fan of this web site would like to continue updated.
I like this blog very much so much wonderful information.
Really nice info you have here, gracias
Really nice info you have here, gracias
I just want to mention I am just beginner to blogs and definitely liked you’re web blog. Very likely I’m want to bookmark your website . You actually come with exceptional articles. Cheers for sharing your web page.
Your writing style is undoubtedly impressive.
hello there and thanks on your information ? I have definitely picked up something new from proper here. Anyway I am adding this RSS to my e-mail and could look out for a lot more of your respective exciting content. Make sure you replace this again soon..
Terrific work! This is the type of info that are meant to be shared across the web. Thanks =)
Excellent issues altogether, you just gained a logo new reader. What may you recommend in regards to your put up that you made some days in the past?
I have not checked in here for some time since I thought it was getting boring, but the last few posts are good quality so I guess I’ll add you back to my everyday bloglist. You deserve it my friend 🙂
Hey there, You have done a fantastic job. I will certainly digg it and personally suggest to my friends. I’m sure they will be benefited from this web site.
This is really interesting, You are a very skilled blogger. I have joined your feed about Welsh Teenager Describes Her EDS Pain | EDSAwareness.com and look forward to seeking more of your fantastic article. Also, I have shared your website in my social networks!
Wow, amazing weblog structure! How long have you been running a blog for? you make running a blog look easy. The entire glance of your web site is magnificent, let alone the content material!
Please check out caringmedical.com!! Type Ehlers Danlos into their search engine for information about how to treat and lessen dislocations with Prolotherapy! It has really helped lessen my dislocations and changed my pain! Take care! Bendy in TX 🙂
Your website style is excellent, your articles or blog posts is definitely exceptional : D. Very good exercise, best wishes
Goo one. Really impressive and helpful content. I really liked this and definitely will share it with my friends.