New Hampshire EDS Support Group Resources
If you would like to share your resources please send them to EDSNH@hotmail.com.
ABOUT EDS:
- Ehlers-Danlos Syndrome, Hypermobility Type Information
- Ehlers-Danlos National Foundation
- Free EDS Webinars!
- American Journal of Medical Genetics: 2017 Updated EDS Reports
ADVOCATE RESOURCES:
FIND THE RIGHT DOCTOR
- NH List of Recommended Providers (On-going process)
- List of Recommended EDS Doctors by: Ellen Smith
- New England List of Care Providers by Jon Rodis & Others
MANAGING PAIN/EDS:
- Muldowney PT – Rhode Island (it’s closer than you think)
- DermaTran – Pain Treatment Options
- Boston University Dr. Chopra – Managing EDS
MEDICATIONS/SUPPLEMENTS
SUPPORT/DISCUSSION GROUPS
- Inspire – Ehlers-Danlos Support Group and Discussion Community
- NH EDS Support Group on Facebook
- NFMCPA
DIET & NUTRITION
TRAVEL & HOSPITALITY
MEDICAL CANNABIS
- NH Dept. of Health & Human Services – Therapeutic Cannabis Program Info.
- MPP – Marijuana Policy Project
- Decarboxylator for Oils/Edibles
- Buy CBD Online! (Yes – it is legal)
- Prime Alternative Treatment Centers
- Prime ATC – Financial Hardship Application
- Vaporizer – Arizer
- Vaporizer – Pax
HEALTHCARE POLITICS
- NH Legislation…
- NH Senate
- House of Representatives
- CDC Opioid Prescribing Guidelines
- NH General Court Streaming Media
- NH General Court Links of Interest
- NH.gov
ALTERNATIVE TREATMENT OPTIONS:
- What is Feldenkrais Method?
- What is being Mindful?
- Cusack Family Protocol – Supplements for Managing EDS
- Qigong (pronounced chi-gong)
- Prolozone Therapy in New England
- Biofeedback Providers in New Hampshire
- Core Spirit – Alternative & Natural Medicine
DISABILITY:
CLINICAL TRIALS
USEFUL PRODUCTS:
- Recommended Gloves (They help with my aches)
- Penetrex: Pain Relief Cream (100% Satisfaction Guarantee)
- Body Support Store
- Aircast Boot Gate Issues? Even out with EvenUpCorp.com!
YOUTH/PARENT RESOURCES
BLOGS
- Ellen & Stuart Smith’s Pain Blog – 5 Stars
- 3 Things the Chronically ill Wish Their Loved Ones Knew
- 8 Things I Miss Most as a Result of Chronic Pain and Illness
- Crazy Chronic Life Blog
- TheMighty.com – Ehlers-Danlos Syndrome Stories
- Disability: Awakening Others About the Challenges of Having A Disability
AWARENESS & ACTIVITIES
FUNDRAISING SITES
OTHER RESOURCES
