New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ – Next Session February 25, 2020


New Feature-Length Ehlers-Danlos

Fellow Zebras, medical professionals, and everyone living with an invisible condition, 
We want to invite you to join the screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome all across the world, at Penn State University during rare disease months.
When: February 25, 2020, 6 PM EST
Where: Penn State University, 3000 Ivyside Park, Altoona, PA  16601
Harry E Slep Student Center, Room: Pondview 
There are several parking lots on campus but please follow your GPS to the above address, which will take you to a parking lot with visitor spots.
This event is hosted by Sue Patterson and free of charge. The room is wheelchair-accessible.
For questions and further information, contact the host Sue directly via sap406[at]
Please follow the event on FB or check the Penn State announcement for any possible changes of venue or date:
I will also announce any additional information on the film’s website:
Feel free to spread the word about this event. 
Karina (The director of the film)



Trailer 1:

Trailer 2:

Trailer 3:


About the filmmaker:

Karina Sturm

Karina Sturm

Karina grew up in Germany but currently lives in San Francisco, CA. After finishing school, she has worked in the medical field for eight years. As a laboratory technician, she worked in a German research facility with a focus on biotechnology. In 2010, she developed symptoms related to Ehlers-Danlos syndrome and comorbid conditions and was unable to continue her research. She soon found her passion for writing and started to combine her medical knowledge with her personal experiences with disability and chronic illness and produced articles about medicine, science, and disability. 2018, Karina was accepted into a journalism program in Edinburgh, Scotland and has been studying ever since. As part of her degree, she has worked with blind journalist Belo Cipriani and produced three accessible short films called ”Firsts” that feature writers with different disabilities. Additionally, she writes for an Austrian magazine for medical professionals with a focus on the patient’s perspective, and she has also written for international publications such as the Columbia Journalism Review. Besides journalism, Karina has a strong passion for all activities that involve being on or in the ocean. She loves traveling, dogs, facts, and Heavy Metal music, and hates lies, intolerance, and cooking. Karina’s film ’We Are Visible’is a non-profit project supporting EDS organizations around the globe and is entirely self-funded. It is also a part of her MA thesis. Moreover, she considers this to be the most important project of her life.

Find out more about Karina on her website:

Or follow her on Facebook for the lastest information about her work:

Take a look behind the scenes:

Meet Jojo, one of the main characters in the film:

Meet Karina, the filmmaker:

Leave a Reply

Your email address will not be published. Required fields are marked *

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...
%d bloggers like this: