Music Night Benefit Helps Jodie with EDS Expenses
Jodie suffers from EDS – type III hypermobility. A benefit event “Music Night in Carlisle” helps Jodie with EDS related expenses.
By Emily Parsons
Tuesday, 21 May 2013
“Two students have called upon local talent to help raise money in support of a Carlisle teenager.
Kat Vevers and Lizzie Brough were inspired to act after reading about Jodie Vasquez and her ongoing battle with Ehlers-Danlos Syndrome.
The 19-year-old, from Currock, has been diagnosed with type three hypermobility, and her internal organs are failing one by one.
She has had her appendix and large bowel removed, a stoma fitted to deal with her failing bladder, her small intestine is slowly failing and she cannot digest food.
Instead, Jodie is fed through a line in her neck which passes into her heart.
Kat and Lizzie were behind last year’s Zombie Walk through the city centre, but this time decided to try something different.
“We opted to leave the gore of zombies for Halloween,” said Lizzie, “and instead celebrate Cumbria’s talents.”
The pair are instead hosting Jodie’s Jam at the Calva Bar, Fusehill Street campus, to raise awareness of Ehlers-Danlos Syndrome and funds for The Sick Children’s Trust.
Local bands Shoebox Fantasy and Educating Jen will headline the night, with a special guest appearance from Stevie Las Vegas.
Jodie was diagnosed with EDS at the age of 15 and, despite continuing medical problems, last year launched her own charitable venture, Jodie’s Journey.
Supported by her mum Maxine Farish, she has already raised thousands of pounds for The Sick Children’s Trust, which provides home-from-home accommodation for families with unwell children.
The event takes place on Friday June 7 at 7pm. Tickets cost £3 from Calva Bar on Fusehill Street or GlamTan Tanning located in Lowther Arcade in Carlisle.”
Jodie’s internal organs are failing one by one. She is an example of how destructive Ehlers-Danlos Syndrome can be.
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