ChatGPT Image Aug 7, 2026 at 05_28_25 PM – EDSAwareness.com

Follow Us:

Join Our Team
Donate Now

Home
About Us
What is EDS?
Team
Resources
- For Patients
  - Patient Guides
  - Research Round-Up
- For EDS Support Group Leaders
Webinars
Newsletter
Articles
Podcast
Films
Contact Us

ChatGPT Image Aug 7, 2026 at 05_28_25 PM

Support us through our Amazon store for EDS-related products

Upcoming

Webinars Schedule

See full schedule

Webinars

Current Poll

How long until you received a proper diagnosis for EDS?

1 year
2-5 years
5-10 years
10-20 years
>20 years

Loading ...

EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

Support EDS Awareness

Quick links

Home
Team
Contact
About EDS
Policy

Social Links

Support EDS Awareness

Donate Now

© 2026 EDS Awareness. All rights reserved | Privacy Policy