A heartfelt story of EDS describing how Mimi Newman is dealing with this challenging disorder.
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How long until you received a proper diagnosis for EDS?
Run Like a Zebra Race
Brown Medical School Cerebrospinal Fluid Disorders Symposium
Dayton Zebras 5k
R.I. EDS Awareness Month Party
Tri State May EDS Awareness Activities
May EDS Awareness Activities in R.I.
RareKC Town Hall Event 2018
EDS Awareness at Dayton 2017 Holistic Symposium
Standing Up for POTS October 7 2018
Chiari 5k Walk with Dayton Zebras
2017 EDS Global Conference
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University of Pittsburgh Occupational Therapy Students
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Ehlers-Danlos Awareness Exhibit at the Arthritis Foundation Expo in Cleveland, OH
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Univ. of Illinois Round Table Discussion about EDS
Supporters of Grace Ehrbar, a Cleveland member with VEDS who ran the Cleveland Marathon in May for EDS Awareness
Ehlers-Danlos Hoofbeat Run Walk-N-Roll included a 1 mile run/walk/roll, a 5K run/walk and a ½ marathon run on August 6, 2016 in King Ferry, NY. CLICK to learn more.
The Inland Northwest Ehlers Danlos Support Group painted coffee mugs during a meeting and had a blast!
Cara Burton and her family had an article published in the Southern Indiana Magazine “Explorer” – CLICK HERE for the article
The Cleveland Group’s EDS/Chiari Walk & Meet-up was a fun activity! Click here for list of more walks.
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