EDS Teen Graduates and Plans for College


Emily Hain

Emily Hain has Ehlers-Danlos Syndrome plus a variety of other disorders. She managed to graduate from high school and plans to go to college to become a social worker. Read her difficult story dealing with this disability.

“Hain has a condition called Ehlers-Danlos Syndrome, which results in hypermobility where joints stretch farther than normal, causing joint dislocations.

She’s has been homebound since sophomore year, with teacher Christine Mullins coming to instruct her several times a week.

“There’s no set schedule,” Hain said. “I really just do school work when I feel well.”

Hain said a simple weather change can bring on a sudden headache or cause so much pain in her knees that she’s unable to walk. “She’s had such a different education over the past four years than her peers have had,” Kelly Hain, Emily’s mother, said. “She’s had the life experience where they have had the school experience.”

Kelly Hain said as Emily prepares for her next surgery, just three days after graduation, she’s hoping it will bring an end to some of her severe symptoms.

“There is no cure and no guarantee that I’ll never have pain again, but this surgery will help minimize that pain and hopefully allow me to lead a more normal life,” Emily said.

After her surgery, Emily is hoping to ease into a couple of classes at Rowan-Cabarrus Community College this fall. She wants to become a teacher and later get her master’s degree in counseling.”

Emily is brave young lady overcoming the issues facing her with Ehlers Danlos Syndrome. She is an inspiration to all of us.

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