Ehlers-Danlos Syndrome Commonly Associated Health Problems
This is an interesting summary of various health problems associated with EDS
“Ehlers Danlos Syndrome (EDS) is a group of inherited disorders that affects the production of collagen in the body. Textbook symptoms may include problems such as easily bruising or scarring, joints that are hypermobile, skin that is very elastic and weak tissue throughout the body. There are several variations of EDS that can range from mild to life threatening. While the common symptoms of EDS can be found online, there are many problems that those with the disorder face that are not well-publicized.
Subluxations or dislocations
Because collagen is lacking in the body of those with Ehlers Danlos Syndrome, the joints have a tendency to go in and out of place. This can occur in the back, knees, shoulders, ankles, feet, wrists, hips or any other place in the body. Sometimes, these displacements or shifts can be excruciatingly painful. Often, it is just an annoyance that causes the sufferer to move the bones back in place. Over time, this causes arthritis that can be crippling.”
Digestive problems
Problems such as Irritable Bowel Syndrome (IBS), acid reflux and heartburn, constipation or diarrhea. While foods may be a trigger for some people with EDS, many find that there is no real pattern to these ailments. Because collagen is important to the whole body, most issues are caused by the digestive system not having enough collagen to function effectively.
Circulatory system
EDS can cause serious problems within the circulatory system. People with this condition often suffer from low blood pressure and high cholesterol. They may experience aneurysms or tiny veins that cause restricted blood flow, resulting in ruptures in the veins and arteries. Postural orthostatic tachycardia syndrome (POTS) is a serious condition that causes blood to pool in the lower extremities, resulting in the victim feeling lightheaded or even fainting when standing up from a sedentary position.
Dental problems
People that have EDS commonly have high palates in their mouths with crowded teeth. The mouth may be small and Temporomandibular dysfunction may occur. Gingivitis or recessed gums may cause problems such as bleeding. Teeth may shift within the gums, causing serious dental problems or pain.
Reproductive
Girls with EDS may suffer from menstruation cycles much earlier than their peers. Significant bleeding and cramping are hallmark symptoms for women of all ages. Women who are pregnant may experience miscarriage or uterine rupture.
Click here to read the full article
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I couldn’t refrain from commenting. Exceptionally well written!
I am the one who wrote the article above, and just wanted to thank you for the wonderful comments! I feel very privileged that my article was worthy to be posted on such a website!
I agree, well done. You broke down the sections nicely, it is easy to understand and reference for future. Thanks
The link to read the full article is broken. Is there anway to access it?
Unfortunately, this article we published in 2012 and has been removed from the internet.
Thank you for contacting us.
Our goal is to Connect, Support and Educate patients, caregivers and professionals on EDS through our webinars, continuing education courses and other activities.
Click on the highlights to be taken directly to the selected page!
New Free webinar last month
You can also sign up for our new EDS Awareness Newsletter
webinar by Dr Chopra
You may find this recording from hEDS expert Dr Francomano helpful.
Here are webinars by Muldowney on PT
We have helped to form over 120 EDS Support Groups on our map.
We offer free webinars to educate our members and the EDS Community.
You can also search from our over 100 webinar recordings by EDS expert presenter, location or specialty.
Here is a webinar by Dr. Tinkle in Indianapolis
You can learn more about MCAS from the experts
You can also listen to a live webinar on MCAS
There are a number of webinars on Pain Management.
There a few related to POTS
Here are a few webinars discussing GI issues.
Here is a link to a world-wide survey we conducted.
We just relaunched our new Online EDS Healthcare Providers Educational program.
Anyone can attend these programs.
We are now accredited to provide CNE for Nursing.
You can get email announcements for future live webinars by requesting the “free Guide” on our site.
We also have a teacher’s guide that might be helpful.
We want to help you find the resources you need.
Also click here to checkout the New EDS Documentary video we just published ‘We Are Visible”
Kind Regards,
John and the EDS Awareness Team
http://www.chronicpainpartners.com
I can’t get the whole article bc the web link is broken. It is amazing so far!!! I’m trying to figure out if I have hEDS and it could help my family as well. Could you send your article to me? Or any information you have on hEDS that you could throw my way would be amazing! Thank you…
please send article to me also…
link does not work
great info:)
yhnx
Holly,Unfortunately, this article we published in 2012 and has been removed from the internet.
Thank you for contacting us.
Our goal is to Connect, Support and Educate patients, caregivers and professionals on EDS through our webinars, continuing education courses and other activities.
Click on the highlights to be taken directly to the selected page!
New Free webinar last month
You can also sign up for our new EDS Awareness Newsletter
webinar by Dr Chopra
You may find this recording from hEDS expert Dr Francomano helpful.
Here are webinars by Muldowney on PT
We have helped to form over 120 EDS Support Groups on our map.
We offer free webinars to educate our members and the EDS Community.
You can also search from our over 100 webinar recordings by EDS expert presenter, location or specialty.
Here is a webinar by Dr. Tinkle in Indianapolis
You can learn more about MCAS from the experts
You can also listen to a live webinar on MCAS
There are a number of webinars on Pain Management.
There a few related to POTS
Here are a few webinars discussing GI issues.
Here is a link to a world-wide survey we conducted.
We just relaunched our new Online EDS Healthcare Providers Educational program.
Anyone can attend these programs.
We are now accredited to provide CNE for Nursing.
You can get email announcements for future live webinars by requesting the “free Guide” on our site.
We also have a teacher’s guide that might be helpful.
We want to help you find the resources you need.
Also click here to checkout the New EDS Documentary video we just published ‘We Are Visible”
Kind Regards,
John and the EDS Awareness Team
http://www.chronicpainpartners.com
Here is the full article from 2012: https://web.archive.org/web/20130113055239/http://www.helium.com/items/2367660-health-problems-associated-with-ehlers-danlos-syndrome