Ehlers-Danlos Society Receives $1 Million Gift for Hypermobile Ehlers-Danlos syndrome (hEDS) Research


An anonymous donor has presented us with a $1 million gift to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often disabling connective tissue disorder.


This is the single largest gift in the 33-year history of the Ehlers-Danlos Society, and the largest individual gift in the history of hypermobile EDS research.

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