Ehlers-Danlos Syndrome Can Look Like Child Abuse

We have heard stories about parents taking their EDS children to the ER for a joint dislocation.  It is unacceptable that some are being accused of child abuse! 

 

“Sadly, readers, I have heard a few other cases of physical disabilities, particularly rickets,being mistaken for child abuse and disabled children being taken into care.

Now, here is a feature from Take a Break, a UK women’s weekly, on a couple whose children were taken into care after they suffered unexplained injuries. They eventually demonstrated that the mother and children had EDS and the children were returned to them.

I wish it was possible to train social workers in recognising the difference between physical disabilities and child abuse. Sadly those who physically abuse their children tell all sorts of lies to cover their tracks, so suspicious social workers do have to carry out careful checks for the protection of children.

Sadly the mother was not diagnosed with EDS until all this had happened. I, for one, really hope people are being diagnosed with this condition earlier these days. What can be done to ensure this happens to prevent another case like this one?”

Now, we see why parents of children with Ehlers-Danlos Syndrome need to be careful explaining “injuries” to the uneducated social workers and doctors!  

Thanks to Matthew Smith for the photo scan of the original published article.

Click here for the original source of this article

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