January 8, 2014 PRESENTER: Ellen Lenox Smith
RI Arthritis Foundation Ambassador and RI US Pain Foundation Ambassador
TOPIC: “Taking control of Life with EDS; Steps on how to help yourself”
Additional Resources from Ellen:
Another way to determine food reactions is to use this type of treatment using muscle energy.
NAET – Nambudripad Allergy Elimination Technique
HOW I CURED MY POTS:
VECTTOR TREATMENTS – used1-2 X’s daily
Dr Donald A. Rhodes
South Texas Innovative Medicine
5833 Spohn Drive; Suite 401
Corpus Christi, TX 78414
361-992-9432; FAX 361-992-3978
cell: 361-438-8181; paindefeat.com
DNA DRUG SENSITIVITY TESTING –
IF YOU LIVE WITH DRUG Sensitivities – consider this test – you will know for the rest of your life what your body can metabolize.
what you need to know about personalized prescribing
800-TEST-DNA ; 800-837-8362 or visit online at www.HealthandDNA.com
GeneMedsRX can help you minimize the risk of adverse drug reactions
(ADRS). ADRS are the fourth to sixth greatest killer in the U.S. with more that 100,000 deaths per year. These are not errors; they occur within the FDA-approved dosage and labeling recommendations. Many maybe preventable if potential drug-drug and drug-gene interaction risks are better considered.
NEADS – SERVICE, THERAPY AND HEARING DOGS
P.O. Box 213
West Boylston, Massachusetts 01583
About the INvisible Project:
I was an original – the first batch in 2010.
ABOUT Ellen Lenox Smith
Ellen Lenox Smith has emerged as a leading voice for patients in living with pain in her state of Rhode Island and across the country. Featured in local and national press accounts, Mrs. Smith brings a reasoned and compassionate perspective to the need for safe patient access to medicine and timely, accurate care. She has been featured in such places as the NY Times, NPR Radio, Washington Post, Pain Pathways and Arthritis Today Magazines and presented a workshop at the EDS conference this past summer of 2013.
Mrs. Smith suffers from two rare conditions. One is a degenerative collagen disorder called Ehlers-Danlos Syndrome. This crippling disease allows her joints to become easily dislocated, causing vice-like pain and confining her on and off to a wheelchair. She presently has endured twenty-two surgeries and countless visits to her doctors. Her second condition is called sarcoidosis, which has allowed enlarged lymph nodes and granulomas in her lungs. Both these conditions are presently not curable.
Mrs. Smith has enjoyed a long and distinguished career, predominantly in the field of education. She taught social studies from 1989-2007. Mrs. Smith holds a Bachelor of Science degree in Elementary Education from Springfield College and a middle school endorsement to teach SS and Science.
Married to her husband for over 40 years, Mrs. Smith has devoted much of her recent time to advocacy. She is a Rhode Island ambassador for both the US Pain Foundation and Arthritis Foundation, on the board of the Rhode Island Patient Advocacy Coalition (RIPAC), Appointed by the governor to the ATEL Program, (Adaptive Telephone Equipment Loan Program) and a volunteer for Marriage Equality Rhode Island. In 2006, she was accepted into the Connective Tissue Research at the National Institute of Health to help search for a cure to Ehlers-Danlos Syndrome.
A proud mother of four adult children and two grandsons, Mrs. Smith is also an organic gardener, and prior to her disability was a master swimmer and high school swim coach. A member of the Bell Street Chapel Unitarian Church, Mrs. Smith is a resident of Scituate, Rhode Island.
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