EDS Awareness “Speaker Series” – Ellen Lenox Smith – RECORDING AVAILABLE

Ellen Lenox Smith’s January 2014 presentation recording and additional resources are provided below.

“EDS Awareness Speaker Series” – a webinar program hosted by EDSawareness.com
EDS Awareness hosts FREE online learning sessions twice/month!  In this ongoing series, medical topics are presented to patients within the context of Ehlers-Danlos Syndrome and associated health conditions.

Erllen Smith_1

January 8, 2014 PRESENTER: Ellen Lenox Smith
RI Arthritis Foundation Ambassador  and RI US Pain Foundation Ambassador 

TOPIC: “Taking control of Life with EDS;  Steps on how to help yourself”

Click here to replay the recording


Additional Resources from Ellen:

Another way to determine food reactions is to use this type of treatment using muscle energy.
NAET – Nambudripad Allergy Elimination Technique   



VECTTOR TREATMENTS – used1-2 X’s daily

Dr Donald A. Rhodes

South Texas Innovative Medicine

5833 Spohn Drive; Suite 401

Corpus Christi, TX 78414

361-992-9432; FAX 361-992-3978

cell: 361-438-8181;  paindefeat.com



IF YOU LIVE WITH DRUG Sensitivities – consider this test – you will know for the rest of your life what your body can metabolize.

what you need to know about personalized prescribing

800-TEST-DNA ; 800-837-8362 or visit online at www.HealthandDNA.com

GeneMedsRX can help you minimize the risk of adverse drug reactions

(ADRS).  ADRS are the fourth to sixth greatest killer in the U.S. with more that 100,000 deaths per year. These are not errors; they occur within the FDA-approved dosage and labeling recommendations. Many maybe preventable if potential drug-drug and drug-gene interaction risks are better considered.



P.O. Box 213

West Boylston, Massachusetts 01583




About the INvisible Project:

I was an original – the first batch in 2010.


ABOUT Ellen Lenox Smith

Ellen Lenox Smith has emerged as a leading voice for patients in living with pain in her state of Rhode Island and across the country. Featured in local and national press accounts, Mrs. Smith brings a reasoned and compassionate perspective to the need for safe patient access to medicine and timely, accurate care. She has been featured in such places as the NY Times, NPR Radio, Washington Post, Pain Pathways and Arthritis Today Magazines and presented a workshop at the EDS conference this past summer of 2013.

Mrs. Smith suffers from two rare conditions. One is a degenerative collagen disorder called Ehlers-Danlos Syndrome. This crippling disease allows her joints to become easily dislocated, causing vice-like pain and confining her on and off to a wheelchair. She presently has endured twenty-two surgeries and countless visits to her doctors. Her second condition is called sarcoidosis, which has allowed enlarged lymph nodes and granulomas in her lungs. Both these conditions are presently not curable.

Mrs. Smith has enjoyed a long and distinguished career, predominantly in the field of education. She taught social studies from 1989-2007. Mrs. Smith holds a Bachelor of Science degree in Elementary Education from Springfield College and a middle school endorsement to teach SS and Science.

Married to her husband for over 40 years, Mrs. Smith has devoted much of her recent time to advocacy. She is a Rhode Island ambassador for both the US Pain Foundation and Arthritis Foundation, on the board of the Rhode Island Patient Advocacy Coalition (RIPAC), Appointed by the governor to the ATEL Program, (Adaptive Telephone Equipment Loan Program) and a volunteer for Marriage Equality Rhode Island. In 2006, she was accepted into the Connective Tissue Research at the National Institute of Health to help search for a cure to Ehlers-Danlos Syndrome.

A proud mother of four adult children and two grandsons, Mrs. Smith is also an organic gardener, and prior to her disability was a master swimmer and high school swim coach. A member of the Bell Street Chapel Unitarian Church, Mrs. Smith is a resident of Scituate, Rhode Island.

Click to Play Recording

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