Dana Describes Her Journey with POTS
Hello everyone! My name is Dana and I suffer from POTS (Postural Tachycardia Syndrome). I decided to create this channel to reach out to others who have this disorder too.
About me:
I have had POTS since I was 16 years old. I am now 28. (Had a birthday in April)
I tend to have the Hyperadrenergic POTS, but do not completely fit that mold.
I also have adrenal insufficiency, so I take hydrocortisone for that.
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Dear Dana,
You are so strong for making this video.My daughter is 16 with POTS.She also has EDS and had three heart surgeries for SVT-AVNRT.Her heart rate was 282 bpm when the paramedics to her to the hospital.
Now with POTS ,NO medications work betablockers -itcy and swelling,midodrine and florinef are miserable for her too.
She was homebound for 5 months doing school at home.IV saline fluids work sometimes.She is due to have another round this week,as she was in the ER last week with her POTS and the IV fluids helped her.
She too looses friends and gets isolated in the house and is tired of explaining why. I hope she too does her video to help others understand her illnesses. She wonders if her future dreams will become a reality or not.She loves music and plays many instruments,and sings .She had to stop the violin due to her EDS now and is giving up other loves too. Thanks for sharing your exeriences with us I hope this will help her also.
Dolores
Dolores,
Thanks for sharing this story about your daughter’s struggles with POTS. She is lucky to have such a supportive caregiver.
God Bless,
Deanna
Dana- how can I private message you?
info@edsawareness.com
Thank you so much for sharing this.
I was diagnosed with POTS a few weeks ago after having felt sick for the past three years. My current doctors don’t seem to know that much about it I don’t even know what type I have.
It is so discouraging to feel so sick all the time.
This video just reminded me that I am not alone.
Thank you again
Thank you. I’m glad the video helped