Archive for the ‘Videos’ Category

Listen to a song about EDS Awareness

Posted on May 18, 2013

A song written about EDS awareness.  “The Cure”. Please listen and share. This talented songwriter has Ehlers-Danlos Syndrome, Hypermobility type. Click here for original source of video We appreciate your Likes and Comments

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Living With Chronic Pain (Ehlers Danlos Syndrome)

Posted on April 29, 2013

But You Don’t Look Sick? Rei Haycraft tells us her story about dealing with EDS (Ehlers Danlos Syndrome). It is hard to get people to understand the pain that we are dealing with daily. We appreciate your Likes and Comments

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Basics of Ehlers-Danlos Syndrome

Posted on April 28, 2013

This is a basic, no frills explanation of Ehlers-Danlos Syndrome. Follow one woman’s journey to diagnosis and be encouraged by the positive way she handles changes in her life. We appreciate your Likes and Comments

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Make a Wish for Emily Hain from Salisbury, North Carolina

Posted on December 18, 2012

Emily Hain from Salisbury, North Carolina was given a send-off celebration in honor of her wish to go to New York City to see the Broadway Musical, “Wicked”. Emily is undergoing treatment for Ehlers-Danlos Syndrome, a disorder marked by extremely loose joints, hyper elastic skin that bruises easily, and easily damaged blood vessels. We welcome […]

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What is Ehlers-Danlos Syndrome

Posted on December 5, 2012

“Erica was invited to explain to the whole school about a genetic disorder that nearly killed her a few years ago. It is called Ehlers-Danlos Syndrome (EDS). It is a problem with the collagen in the body so it affects every cell in the body. Every system is affected. She lives in constant pain, more […]

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Learn more about Ring Splints

Posted on December 1, 2012

The Beautiful Splint Company in York, UK makes medical jewellery for people who need specific support for their joints, for instance due to arthritis. This film follows Emma, an artist who has Ring Splints made for her fingers due to hypermobility caused by Ehlers-Danlos Syndrome, which has also resulted in arthritis in her finger joints. […]

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