Archive for the ‘TV Shows’ Category

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TV show portrays EDS experience, ensures accuracy

Posted on May 10, 2013

By Mike Pyle  for Your Local Guardian.co.uk British soap opera “Coronation Street” casts Cherylee Houston to play the character Izzy Armstrong, who has Ehlers-Danlos Syndrome. The show consults with Michelle, an EDS parent, to ensure an accurate portrayal of the disorder. A mum who suffers from a rare illness has been helping make sure the bosses […]

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Performers helping to Raise Funds for EDSer

Posted on March 5, 2013

By Kathryn Bradley Friends rally to help Carlton Colville woman with debilitating condition Young performers will take to the stage next weekend to raise funds for a talented musician whose promising career was ended by a debilitating genetic condition. Heather Willis, from Carlton Colville, was a keen performer, singer, harpist and flautist before being diagnosed […]

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“No Matter What’s Going on With My Brain There’s Always Music in My Head.”

Posted on January 14, 2013

The Bellmawr resident writes edgy, melodic rock songs with titles like “Palinopsia,” the name for an optical disturbance that’s among the debilitating symptoms of Ehlers-Danlos Syndrome.About four years ago, Fatale was diagnosed with the connective-tissue disease, which creates havoc in the joints, spine, and elsewhere. After surgeries left her barely able to move her head, […]

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