Archive for the ‘Pacing Techniques’ Category

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Hypnotherapy May Help With Joint Pain, Sleep

Posted on May 29, 2013

Angela Woods is looking for different methods to relieve pain and improve sleep.   By Shawn Conner, Vancouver Sun Photograph by: Ward Perrin Ward Perrin , Vancouver Sun “Over the years, Angela Woods has tried “just about everything” to manage the pain caused by Ehlers-Danlos syndrome. The retired commercial radio inspector has tried physiotherapy, massage […]

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A Discussion About EDS, POTS, NMH and VVS

Posted on May 25, 2013

Learn more about Ehlers Danlos Syndrome, Dysautonomia (Postural Orthostatic Tachycardia Syndrome as well as Neurally Mediated Hypotension ‘NMH’ which is also known as Neurocardiogenic Syncope ‘NCS’ or Vasovagal Syncope ‘VVS’), and other spine disorders. “This blog is about disability and ability. It’s about the ups and downs of living with a range of painful and very […]

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Listen to a song about EDS Awareness

Posted on May 18, 2013

A song written about EDS awareness.  “The Cure”. Please listen and share. This talented songwriter has Ehlers-Danlos Syndrome, Hypermobility type. Click here for original source of video We appreciate your Likes and Comments

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Hannah’s Cartoons Improve Communication

Posted on May 18, 2013

Hannah spreads EDS awareness through her creative cartoons. Her Stickman booklets and information cards have enlightened and entertained many readers. They have provided an alternative way for EDSers to express their needs. “Hannah was diagnosed with HMS aged 24, having been symptomatic all her life. She did well in school and university, but a year […]

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A “Normal” Day for EDS Family

Posted on May 15, 2013

Families with EDS have additional challenges to overcome on a daily basis.  This family handles EDS with flexibility, care and understanding.   by Jenny; Cheetahs In My Shoes & Just Photos By Me “What’s a ‘normal’ or ‘average’ day for any family?  Get up, breakfast, school/work, home, eat, bed?  With the normal essentials of washing, homework […]

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EDSers Need to Speak Up to Doctors

Posted on May 8, 2013

Many Patients with EDS are struggling with finding medical practitioners who will take the time to understand their condition.  This article urges you to be assertive and be an advocate for yourself. USA Weekend article: Illustrations – Luis Alvarez/Getty Images Written by Cheryl Alkon “About 100,000 people die each year due to medical errors, largely from misdiagnoses, […]

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Hypermobility “Stick Men”

Posted on April 13, 2013

Enjoy the creativity of this EDSer who gets her message across with “stick people” stories, communication cards and signs.     At times we need a little humor!  Hannah from the U.K. has found an effective way to explain EDS symptoms & needs to the public in a casual and light-hearted tone.     Click […]

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When EDS Strikes Families

Posted on April 5, 2013

By Sandra Strege-Mims Barr,  PhD. Sandra Leads the Ehlers-Danlos Syndrome Local Support Group in Dallas, TX. We will be looking today at the impact that a diagnosis of Ehlers-Danlos Syndrome has on a couple or a family. Most families proceed through day after day earning money from one or two incomes, using that money to […]

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