Archive for the ‘Pacing Techniques’ Category

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Rowing is Still Claire’s Passion in Life, Despite Ehlers-Danlos Syndrome

Posted on March 15, 2014

Every day is a struggle for Claire, but the rewards from rowing make it all worthwhile.   Written by LYDIA FALLON “Out on the water is where Claire Connon feels most at home. Rowing down the River Cam as the sun begins to rise; wind in her hair and a smile on her face, the 28-year-old […]

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Chronically in Pain and in Love – POTS and Ehlers-Danlos Syndrome

Posted on February 10, 2014

The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]

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Dr. Brad Tinkle Appointed Medical Advisor for the Hypermobility Syndromes Association

Posted on February 3, 2014

Read this is an exciting announcement from the Hypermobility Syndromes Association!  We congratulate Dr. Tinkle and thank him for his exemplary & ongoing service to the EDS community! The HMSA is very pleased to announce that Dr Brad Tinkle has agreed to join the Hypermobility Syndromes Association as a Medical Advisor! Many of you will remember […]

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EDS Awareness Speaker Series – Alberto Friedmann – Recording

Posted on November 5, 2013

  We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]

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Finally Diagnosed with Ehlers-Danlos Syndrome and Chiari

Posted on October 30, 2013

 It took Karen Dixon 5 years to finally get diagnosed with EDS and Chiari. She originally discovered her symptoms while watching a show called “Mystery Diagnosis”. “While I was watching the show, I could not help but realize the similarities I had with the patient on the show”! By KAREN DIXON Editor’s note: Today, we are highlighting […]

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Is it Anxiety, Depression or POTS?

Posted on October 29, 2013

 POTS (postural orthostatic tachycardia syndrome) is a collection of symptoms that may not be easily detected or diagnosed. by Sue Ann Rybak “John Point, of Chestnut Hill, was a typical kid who loved hanging out with his friends on the basketball court. But in the Summer of 2009 he started to have flu-like symptoms: aches, fatigue, […]

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Doctor Speaker Series: Dr. Stephane Treyvaud

Posted on September 18, 2013

  We were pleased to have Dr. Stéphane Treyvaud present in our EDS Doctor Speaker Series. His presentation aired on September 18, 2013 at 9:00 pm EST.     Dr. Treyvaud is an adult, and child and adolescent psychiatrist. He is a fellow of the Royal College of Physicians and Surgeons of Canada, of the equivalent college […]

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Listen to Radio Talk Show on “EDS Pain Management”

Posted on September 14, 2013

EDS Awareness was invited to participate in Radio talk show about EDS Pain Management. It aired on Monday night, 7/22/2013. (Click on the title above to listen to a replay of the interview.)  You will also learn about the EDS Awareness Support Group program. Click here  to listen to the radio show (after commercial). Enjoy the program. We appreciate your Likes […]

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