Archive for the ‘Pacing Techniques’ Category

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Gabrielle’s Personal Battle with Ehlers-Danlos Syndrome

Posted on January 20, 2015

After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]

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Chronic Pain from Ehlers-Danlos Syndrome Leads to a Drastic Decision

Posted on December 26, 2014

Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)

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How Yoga Helps Christine Cope with Ehlers-Danlos Pain

Posted on November 26, 2014

Christine has found a method to cope with her Ehlers Danlos Syndrome that works well for her. Practicing gentle yoga has changed the way she thinks and feels about her pain and helps her get back more control over her life.   By Locke Hughes. “Many of us have dealt with a painful injury or illness at some point […]

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Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Posted on October 10, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

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Carrie is Honored for Ehlers-Danlos Caregiving

Posted on August 5, 2014

EDS caregiver, Carrie Brazier, has been nominated for an award recognizing positive role models – the “Young People of the Year” (YOPEY) award.  “She is very selfless and puts everybody else first. If she was not here I could not function,” says her proud EDS mom. By Victoria West. “A carer who has helped raise money for […]

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Webinar by Dr. Peter Rowe – Recording available

Posted on July 16, 2014

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

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Living with Joint Hypermobility While Reducing and Preventing Pain

Posted on June 1, 2014

By Dr. Brad Tinkle – Medical Director of Clinical Genetics at Advocate Children’s Hospital. EDS expert, Dr. Brad Tinkle, shares his recommendations for managing Ehlers-Danlos Syndrome. Joint hypermobility is common condition like being taller or shorter than average. Obviously, some people have more mobile joints than others and this can depend on gender, age, ethnic background, and […]

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