Archive for the ‘Functioning at Home’ Category

When EDS Strikes Families

Posted on April 5, 2013

By Sandra Strege-Mims Barr,  PhD. Sandra Leads the Ehlers-Danlos Syndrome Local Support Group in Dallas, TX. We will be looking today at the impact that a diagnosis of Ehlers-Danlos Syndrome has on a couple or a family. Most families proceed through day after day earning money from one or two incomes, using that money to […]

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Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

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The “Handshake” Mouse for EDSers

Posted on June 1, 2012

An ordinary horizontal mouse requires your forearm to twist away from its natural position. This can create more problems for unstable joints like mine. EDSers do better with a grip that is the same as an ordinary mouse, just turned sideways into a handshake position. I got used to the Handshake Mouse very quickly. This Vertical Mouse […]

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