Archive for the ‘Coping Techniques’ Category

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Transportation Can Present Obstacles for the Disabled

Posted on July 22, 2013

Transportation is difficult for the disabled in all countries.  Disabled people should be given more of a right to the roads than they are. Written by ADAM LUKE Cambridge News.co.uk Picture by Warren Gunn “Daredevil Ian Broughall made national headlines last week after police stopped him as he drove his 9mph disability vehicle along the busy […]

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Ehlers-Danlos & the “Spoon Theory” get attention on BBC News

Posted on June 21, 2013

Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.  BBC  News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience.  We hope this will increase awareness & understanding of  the compromises we EDSers must make to manage Ehlers-Danlos […]

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12 Ways to Help a Nauseous or Unhappy EDS Stomach

Posted on June 5, 2013

by Yvette Thomas If you have Gastrointestinal problems that frequently accompany EDS, here are some helpful suggestions from an EDS Support Group member. (Always consult your doctor first.) 1. Small meals always. Try not to go a long time in between eating. Always carry a little snack with you. Something protein-based like string cheese or nuts. […]

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Proper Brace or Splint Usage Can Protect Joints

Posted on June 2, 2013

Blogger “purlbeadsjo“ presents an interesting discussion, with illustrations of various braces and splints she uses for her body support. “I am one of those EDSers who has a brace for almost every body part! (I’m missing a few) The 1st question that most bendie’s will have is how on earth did I get them all off […]

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Hypnotherapy May Help With Joint Pain, Sleep

Posted on May 29, 2013

Angela Woods is looking for different methods to relieve pain and improve sleep.   By Shawn Conner, Vancouver Sun Photograph by: Ward Perrin Ward Perrin , Vancouver Sun “Over the years, Angela Woods has tried “just about everything” to manage the pain caused by Ehlers-Danlos syndrome. The retired commercial radio inspector has tried physiotherapy, massage […]

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A Discussion About EDS, POTS, NMH and VVS

Posted on May 25, 2013

Learn more about Ehlers Danlos Syndrome, Dysautonomia (Postural Orthostatic Tachycardia Syndrome as well as Neurally Mediated Hypotension ‘NMH’ which is also known as Neurocardiogenic Syncope ‘NCS’ or Vasovagal Syncope ‘VVS’), and other spine disorders. “This blog is about disability and ability. It’s about the ups and downs of living with a range of painful and very […]

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Listen to a song about EDS Awareness

Posted on May 18, 2013

A song written about EDS awareness.  “The Cure”. Please listen and share. This talented songwriter has Ehlers-Danlos Syndrome, Hypermobility type. Click here for original source of video We appreciate your Likes and Comments

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A “Normal” Day for EDS Family

Posted on May 15, 2013

Families with EDS have additional challenges to overcome on a daily basis.  This family handles EDS with flexibility, care and understanding.   by Jenny; Cheetahs In My Shoes & Just Photos By Me “What’s a ‘normal’ or ‘average’ day for any family?  Get up, breakfast, school/work, home, eat, bed?  With the normal essentials of washing, homework […]

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