Archive for the ‘Managing Symptoms’ Category
Posted on September 29, 2015
Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation INVITE YOUR FRIENDS and […]
Posted on September 28, 2015
Watch the recording of this free webinar. Dr. Joan Stoler presents “Update on Complications and Rare Forms of EDS”.
Posted on August 17, 2015
Watch this video to learn about local EDS groups.
Do you wish for in-person friendships with EDSers who ‘get it’?
Do you have the desire to form a local EDS group, but are not sure where to begin, or what is involved?
Assuming there are too few EDSers in your small city?
You might be surprised!
Posted on August 8, 2015
You can help this courageous EDS girl have “the best 14th Birthday ever” by sending her a Birthday card. Include your encouragement, motivational songs, or positive story — to show her you understand the struggles of EDS. Her Birthday is August 31st, so get your wishes in the mail! Address provided below. __ Watch Jazzy’s story in […]
Posted on August 1, 2015
“Our Stories of Strength – Living with Ehlers-Danlos Syndrome”, edited by Kendra Neilsen Myles, is an inspirational collection of stories written by those affected by different types of Ehlers-Danlos Syndromes
Posted on July 31, 2015
By Neil Metcalfe. Hugo Whatton is a 3-year-old with Vascular type Ehlers-Danlos Syndrome. His caregivers must be very cautious in handling him and preventing injuries which could be life-threatening. Kim and Alasdair Hutt of Laurel Avenue, Potters Bar, will tackle a 2.4 mile swim, a 112 mile bike ride and to finish off, they will […]
Posted on July 28, 2015
By Bill Schu. Many doctors do not understand the clinical significance of joint hypermobility. This has a major impact on accessing appropriate treatments. Mobility is great. Hypermobility? Less great. In the joints, hypermobility leads to musculoskeletal pain – and often times, lots of it. A recent review in the Journal of Pain Research outlined several […]
Posted on July 21, 2015
Watch this FREE online learning session! Dr. John Mitakides presents “Musculoskeletal Headaches in EDS”. Sponsored by www.bodysupportstore.com TOPIC: “Musculoskeletal Headaches in EDS” PRESENTER: Dr. John Mitakides Click here for the recording of this presentation Click here for the slides used for this presentation About our speaker: Dr. John Mitakides CLICK HERE for more […]
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