Archive for the ‘Managing Symptoms’ Category
Posted on November 14, 2015
British author Angela Clarke’s new book #FollowMe went to number three in the Kindle chart! The crime thriller set in London features a ‘Hashtag Murderer’. Angela was diagnosed with EDS in 2012. Her previous best-selling book is titled Confessions of a Fashionista. ‘This is Angela Clarke’s debut and what a way to kick off. I loved this book from start to […]
Posted on November 11, 2015
_ _ _ Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain *** Deadline for Public input — ends Wednesday, January 13th *** Page down to see “4 WAYS you can add your voice” and to view the full list of Proposed Guidelines. Please note that EDS Awareness is not advocating FOR or AGAINST […]
Posted on November 2, 2015
Canadians with Ehlers-Danlos Syndrome are desperate for treatment and continue to advocate change in their health care system. MPP Michael Harris is calling for an all-party committee to form a comprehensive strategy on rare diseases. Patients like the Smith siblings are skeptical, but remain hopeful and thankful for community fundraising. By Darcy Cheek, Recorder and Times. You won’t find […]
Posted on November 2, 2015
By: Clair Morton. – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]
Posted on October 20, 2015
Watch the recording of this free webinar. Dr. Mitzi Murray presents “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”.
Posted on October 5, 2015
Watch the recording of this free webinar. “Living Life Again with Dignity Using Medical Marijuana” presented by Ellen Lenox Smith.
Posted on October 1, 2015
Wellapalooza and the EDS Ride for a Cause. – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides themastcellmaster.com 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]
Posted on October 1, 2015
Canadians with EDS have not been receiving the treatment they need. Families who have traveled to the U.S. for EDS treatment are seeking reimbursement from the Ontario Health Insurance Plan. Watch the video press conference and interviews with the affected EDS families.