Archive for the ‘Joint Hypermobility’ Category

If Your Child Moans About Sore Legs Dont Assume They’re Just Lazy

Posted on December 30, 2012

Merrily had problems with her joints.  She was eventually diagnosed with Hypermobility, a form of Ehlers-Danlos Syndrome. When Merrily, my ten-year-old daughter, complained this summer that the sole of her left foot was sore, I was surprised to find a large lump in the arch. Our GP put it down to ill-fitting shoes (she lived […]

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Ehlers-Danlos Syndrome, Hypermobility Type: An Underdiagnosed Hereditary Connective Tissue Disorder….

Posted on December 27, 2012

This is an excellent, medically technical article detailing the hypermobility type of Ehlers-Danlos syndrome.The article was written by Marco Castori. Those looking for a detailed description of this disorder will find this article very interesting and enlightening.   Abstract “Ehlers-Danlos syndrome, hypermobility type, constituting a phenotypic continuum with or, perhaps, corresponding to the joint hypermobility syndrome […]

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Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

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Hypermobility Connective Tissue Disorders

Posted on August 5, 2012

Kristen Means discusses her journey with EDS. 1 in 10 Americans have hypermobility connective tissue disorders, according to EDS expert, Dr. Fraser C. Henderson, Sr. MD. That’s 30 million people – and we don’t know exactly how many are afflicted with EDS. Many of them suffer daily with invisible pain and chronic fatigue. Ehlers-Danlos Syndrome […]

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Former Competitive Gymnast Shares Ups and Downs of EDS

Posted on July 12, 2012

Former competitive gymnast, J Murphy, continues her challenges with Ehlers-Danlos Syndrome. She has had several surgeries and shares her experiences with EDS.  Recently, she celebrates that she is brace-free for the first time in 3 years! “My symptoms haven’t changed. My headaches are still bad but there is not much I can really do about it […]

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