Archive for the ‘Latest Updates’ Category

EDS Teen Graduates and Plans for College

Posted on June 9, 2012

Emily Hain has Ehlers-Danlos Syndrome plus a variety of other disorders. She managed to graduate from high school and plans to go to college to become a social worker. Read her difficult story dealing with this disability. “Hain has a condition called Ehlers-Danlos Syndrome, which results in hypermobility where joints stretch farther than normal, causing […]

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EDS Awareness is a Way of Life

Posted on June 7, 2012

Viviana Garcia Metendez discusses how she is providing EDS Awareness through videos and blogs. Thanks, Viviana!  We appreciate your dedication to helping others learn more about Ehlers-Danlos Syndrome. Click here for more about Viviana

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A Family Dealing with Ehlers-Danlos Syndrome

Posted on May 19, 2012

Many families are struggling with the pains of EDS. They are trying to educate themselves and their practitioners. They do not know where to find support. This is a story of a particular family dealing with this disability. “We moms of EDS kids have a difficult task and a huge responsibility when making these decisions – […]

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What do you know about Ehlers-Danlos Syndrome?

Posted on May 18, 2012

EDS is a little know disability that affects more than 1 in 5000 individuals in the United States alone. Many doctors are not familiar with it. Most people who suffer from EDS are undiagnosed for years – or decades – before they find an answer. Can you relate to this picture? “Ehlers-Danlos syndrome (EDS) is a […]

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