Archive for the ‘Kids with Ehlers-Danlos’ Category

Em Made it to the Conference!

Posted on August 21, 2012

We wrote about Em before the EDNF Learning Conference in Cincinnati, Ohio. She is a very brave young lady. Her mother tells us how she is doing. “But, my kid is pretty amazing. Growing up is challenging under the best of circumstances – adding to that mix complicates things exponentially. Em has had a rough […]

Read More

Former Competitive Gymnast Shares Ups and Downs of EDS

Posted on July 12, 2012

Former competitive gymnast, J Murphy, continues her challenges with Ehlers-Danlos Syndrome. She has had several surgeries and shares her experiences with EDS.  Recently, she celebrates that she is brace-free for the first time in 3 years! “My symptoms haven’t changed. My headaches are still bad but there is not much I can really do about it […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...