Archive for the ‘Kids with Ehlers-Danlos’ Category
Posted on September 6, 2012
On Saturday, October 20, the Cincinnati Zebras EDS Support Group team will be joining thousands of patients, families and supporters of Cincinnati Children’s at Cincinnati Walks for Kids.
Posted on August 21, 2012
We wrote about Em before the EDNF Learning Conference in Cincinnati, Ohio. She is a very brave young lady. Her mother tells us how she is doing. “But, my kid is pretty amazing. Growing up is challenging under the best of circumstances – adding to that mix complicates things exponentially. Em has had a rough […]
Posted on July 12, 2012
Former competitive gymnast, J Murphy, continues her challenges with Ehlers-Danlos Syndrome. She has had several surgeries and shares her experiences with EDS. Recently, she celebrates that she is brace-free for the first time in 3 years! “My symptoms haven’t changed. My headaches are still bad but there is not much I can really do about it […]