Archive for the ‘Kids with Ehlers-Danlos’ Category
Posted on March 30, 2014
The University of Dayton Flyers have a “good luck charm” on their team. Trevin Gray is a 14 year old with Ehlers-Danlos Syndrome who has joined the college team through a program called Team IMPACT. Watch the video news report! By WMCTV.com Staff MEMPHIS, TN – (WMC-TV) – The University of Dayton basketball team faced Florida in the […]
Posted on March 25, 2014
Emily is going through the diagnosis for Ehlers-Danlos Syndrome and has support from family, teachers and friends. Photo by Brian Shypula, Brant News Emily Landry, second from left in front row, sits with some of her classmates at St. Patrick School during a Dress Blue Day in support of the Arthritis Society. […]
Posted on March 10, 2014
Service dogs are not only a cherished companion, but also protect and assist EDSers in amazing ways. “A cocker spaniel has picked up a top prize at Crufts for helping her owner Lucy Watts from Benfleet in Essex. Molly was announced as the winner of the Crufts Friends for Life 2014 competition. Molly and Lucy, who’s 20, […]
Posted on March 9, 2014
This is a touching story about 12-year-old Ciara and her relationship with her mom. Struggling with Ehlers-Danlos pain, Ciara has developed empathy for hurt animals and wants to be a veterinarian someday. By MARY BILLITER “She can’t walk for long periods of time. This I had forgotten until she suddenly wasn’t by my side in the […]
Posted on February 23, 2014
Dismissed by the NHS, Nina now intends to raise £70k to have a life changing surgery at the CHIARI institute in the US. She says, “If I do not try to raise the money, then it is only a matter of a few years before my life will end.” By ROB SMYTH “As most people head towards […]
Posted on February 18, 2014
16 year old Sean wrote an article in his school newspaper about his experience with EDS. He did an excellent job describing the impact that EDS has on a teenager. By: Sean Earley “My name is Sean Earley and I am a Zebra. No, I am not actually a human zebra. I have been living with […]
Posted on January 17, 2014
Many EDS families are having problems dealing with the Health Insurance Marketplace. By JENNIFER SUMMER “Spending hours on the phone talking to various health care representatives was not the way Summerwood resident Sabrina Carr had planned to spend her holiday break with her family. Sabrina, who was diagnosed with fibromyalgia, Peripheral Neuropathy, Myofascial Pain Syndrome […]
Posted on December 15, 2013
Emilia has been such a blessing for this family. By Tui Benjamin, Reporter A TEENAGE singer-songwriter is hoping to hit the fundraising high notes by joining forces with a youngster battling a rare medical condition. Emilia Ward, aged 17, has the ‘X Factor’ according to Brandlesholme four-year-old Annabelle ‘AJ’ Griffin, who is now the aspiring […]
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