Archive for the ‘Exercise’ Category

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Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

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“Some People thought it Was Growing Pains!”

Posted on May 19, 2013

Rose is struggling with Vascular Ehlers Danlos Syndrome and maintaining a positive attitude. By Chris Vetter Chippewa Falls News Bureau  Leader-Telegram                                 | “CHIPPEWA FALLS – Rose Buchmann needs a crutch to walk down the halls at McDonell High School. A rare genetic disorder is slowly causing the tissues and muscles in her body to break down, […]

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Swimmer Diagnosed with EDS

Posted on November 9, 2012

“Trainwreckgirl” describes how she was diagnosed with EDS.  Parents need to listen when their child complains of joint pain. ” I was diagnosed almost 6 years ago when I was 14 I’m 19 now. I was also having  a lot of joint pain I was on a swim team for 13 years and for years […]

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Former Competitive Gymnast Shares Ups and Downs of EDS

Posted on July 12, 2012

Former competitive gymnast, J Murphy, continues her challenges with Ehlers-Danlos Syndrome. She has had several surgeries and shares her experiences with EDS.  Recently, she celebrates that she is brace-free for the first time in 3 years! “My symptoms haven’t changed. My headaches are still bad but there is not much I can really do about it […]

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Athlete with Ehlers-Danlos Syndrome

Posted on July 4, 2012

This is an interview with a Paralympic Swimmer who has EDS.  EDSer Nancy Burpee is interviewed by Faye Rapoport. Many EDSers struggle to maintain an exercise program. Frequent acute injuries prevent us from exercising routinely.  Swimming is one of the best sports for EDS because the water’s bouyancy reduces the weight on our unstable joints. We can […]

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