Archive for the ‘Exercise’ Category

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Gym Instructor with Ehlers-Danlos Helps Disabled Improve Fitness

Posted on September 16, 2013

Daobri has Ehlers-Danlos syndrome and helps others with disabilities to achieve a higher level of fitness. “It’s hardly surprising that Shana Pezaro started comfort eating. After 20 years of unexplained and debilitating symptoms, she had just been diagnosed with multiple sclerosis. Having built up her own stage-school business, she was now losing the ability to walk […]

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EDS Teen Discovers Physical and Emotional Benefits of Therapeutic Riding

Posted on August 11, 2013

Riding gives Karley the chance to get away from everything that is happening in her life. Building an emotional connection with the horse helps her to focus on riding instead of her pain.  By ALLISON HERR, 17 freestyle@lnpnews.com TEEN FEATURE “Sixteen-year-old Karley Hill exudes optimism and is able to share that optimism easily with others. […]

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Former Gymnast Launches Awareness Petition for EDS

Posted on August 7, 2013

Julie is promoting a petition in the UK.    CLACTON AND FRINTON NEWS Reports: “Julie Robertshaw spent her early years as a gymnast with incredible potential, excelling in her talent. But after being struck with unexplained pains in her late teens, her extraordinary flexibility revealed itself be a curse, not a blessing. Now 44, she […]

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9-Year-Old EDSer “Fights Like a Girl”

Posted on July 29, 2013

  MADDISON Parker, 9, lives by the saying “suck it up, princess”. She has to say it several times a day as she battles with Ehlers-Danlos Syndrome! Dear World, My name is Maddison Parker, I am 9 years old, and I have Ehlers-Danlos Syndrome. I want the world to understand Ehlers-Danlos Syndrome, so am sending […]

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EDS Teen Participates in UK Girlguiding Competition

Posted on July 26, 2013

Lucy has Ehlers-Danlos Syndrome and is very active in the UK Girlguiding program. By William Tomaney   –  The Shuttle Picture: MARTIN FELLOWS. “TWO Stourport youngsters are preparing to stage a daring “escape from prison” and dramatic getaway across Europe as part of a national Girlguiding competition. Lucy Fellows, 16, who last year carried the Olympic torch […]

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I am at Peace as Long as I Can Dance

Posted on June 30, 2013

 Proper and fun exercise can relieve some of the frustration we face with Ehlers-Danlos Syndrome.  By Kash Salem “The mums at my baby group are planning a 5K road run. It’s a frequent topic of conversation, and naturally, there came the part I had been dreading. “You should run with us” said one of the mums. “No […]

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Ehlers-Danlos & the “Spoon Theory” get attention on BBC News

Posted on June 21, 2013

Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.  BBC  News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience.  We hope this will increase awareness & understanding of  the compromises we EDSers must make to manage Ehlers-Danlos […]

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Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

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