Archive for the ‘Doctor Speaker Series’ Category

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EDS Awareness Speaker Series – The Evolution of Genetic Diagnosis – Recording Available

Posted on November 27, 2013

EDS Awareness invites you to watch this FREE webinar recording! Our presenter for November 20th was  Stephanie Gandomi, MS, CGC, LGC She is a Licensed Genetic Counselor Her topic was: “The Evolution of Genetic Diagnosis and Why This Matters In Patient Care!” The recording of this presentation is now available at the following link:  Click here to […]

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Dr. Pradeep Chopra Video: Think Tank 2013

Posted on November 15, 2013

Dr. Pradeep Chopra, Director, Pain Management Center Interventional Pain Management Center of Rhode Island Learn more from his very informative video presentation. Be sure to watch all 6 presentations by EDS experts, including Dr. Henderson, Dr. Francomano,  and more.  All the videos below have been updated on 11/12/2013 to include the presentation slides of each doctor. These […]

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Dr. Collins Video: Ehlers-Danlos Syndrome’s Affect on Gastrointestinal Function

Posted on November 14, 2013

Dr. Heidi Collins, EDS expert and patient, talks about how Ehlers-Danlos affects digestion, nutrition, bowel function, and gut-related immune function. She indicates that gastrointestinal complications of EDS are common, potentially disabling, under-appreciated by clinicians, and well-documented in existing literature. Learn more from her very informative video presentation. Be sure to watch all 6 presentations by […]

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Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Posted on November 13, 2013

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

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EDS Awareness Speaker Series – Alberto Friedmann – Recording

Posted on November 5, 2013

  We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]

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Alberto Friedmann from the Discovery TV Episode on Ehlers-Danlos

Posted on November 4, 2013

Watch Discovery Health Channel’s TV episode about Ehlers-Danlos Syndrome. Be sure to also listen to the replay of  interview with Alberto Friedmann, who starred in that TV episode.  Instructions on how to replay are found by clicking this link. Watch the video: This TV segment portrays of EDSers and describes the challenges they face.  It addresses EDS Hypermobility […]

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Doctor Speaker Series: Dr. Diana Driscoll

Posted on October 2, 2013

EDSawareness.com is excited to be offering this Doctor Speaker Series to our EDS Membership. The sessions will be the 1st and 3rd Wednesdays of each month at 9:00 pm EST. Please note: We are limited in the number of openings so please log-in early  to attend the program.  We will provide a link to click on to join the meeting, […]

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Doctor Speaker Series: Dr. Stephane Treyvaud

Posted on September 18, 2013

  We were pleased to have Dr. Stéphane Treyvaud present in our EDS Doctor Speaker Series. His presentation aired on September 18, 2013 at 9:00 pm EST.     Dr. Treyvaud is an adult, and child and adolescent psychiatrist. He is a fellow of the Royal College of Physicians and Surgeons of Canada, of the equivalent college […]

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