Archive for the ‘Teens’ Category

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Kiara Goes to Rehab Twice a Week to Strengthen Her Muscles

Posted on June 15, 2013

  Kiara goes to rehab two times a week to strengthen her muscles.  She has significant support from her family and school.  Source: The Ballarat Courier   <blockquote><p>&amp;amp;lt;a href=”http://ad-apac.doubleclick.net/jump/onl.fairfaxregional/camdencourier/lands/women;ctype=article;cat=camdencourier;cat1=lands;cat2=women;cat3=1570135;region=;locstate=nsw;pos=1;tile=2;sz=xxxx;ord=96549053?”&amp;amp;gt;&amp;amp;lt;img src=”http://ad-apac.doubleclick.net/ad/onl.fairfaxregional/camdencourier/lands/women;ctype=article;cat=camdencourier;cat1=lands;cat2=women;cat3=1570135;region=;locstate=nsw;pos=1;tile=2;sz=xxxx;ord=96549053?” /&amp;amp;gt;&amp;amp;lt;/a&amp;amp;gt;</p></blockquote>  “Kiara Clancy has a tough journey ahead of her. The 13-year-old found out last November that she has a rare condition called Ehlers-Danlos syndrome, which means […]

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Attention Doctors: An EDS Patient’s Bill of Rights

Posted on June 6, 2013

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]

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Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

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“Stand up” for Ehlers-Danlos Awareness – A motivational message…

Posted on May 24, 2013

It’s May 2013, and Ehlers-Danlos Awareness Month is here again.  This EDSer will motivate you to spread awareness in your sphere of influence. If each one of us speaks up whenever we can, it will make a difference. We encourage you to stand up for EDS all year long. Published by Beth “It is May again; time […]

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Music Night Benefit Helps Jodie with EDS Expenses

Posted on May 21, 2013

Jodie suffers from EDS – type III hypermobility. A benefit event “Music Night in Carlisle” helps Jodie with EDS related expenses. By Emily Parsons Tuesday, 21 May 2013   “Two students have called upon local talent to help raise money in support of a Carlisle teenager. Kat Vevers and Lizzie Brough were inspired to act […]

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Listen to a song about EDS Awareness

Posted on May 18, 2013

A song written about EDS awareness.  “The Cure”. Please listen and share. This talented songwriter has Ehlers-Danlos Syndrome, Hypermobility type. Click here for original source of video We appreciate your Likes and Comments

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Hypermobility “Stick Men”

Posted on April 13, 2013

Enjoy the creativity of this EDSer who gets her message across with “stick people” stories, communication cards and signs.     At times we need a little humor!  Hannah from the U.K. has found an effective way to explain EDS symptoms & needs to the public in a casual and light-hearted tone.     Click […]

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When EDS Strikes Families

Posted on April 5, 2013

By Sandra Strege-Mims Barr,  PhD. Sandra Leads the Ehlers-Danlos Syndrome Local Support Group in Dallas, TX. We will be looking today at the impact that a diagnosis of Ehlers-Danlos Syndrome has on a couple or a family. Most families proceed through day after day earning money from one or two incomes, using that money to […]

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