Archive for the ‘Teens’ Category

blog-post-thumbnail
When is Flexible Too Flexible? Ehlers-Danlos Syndrome!

Posted on April 29, 2014

It is interesting that genetics don’t seem to be consistent in this family. By Jeff Leen, The Washington Post. “Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5 feet 2 inches tall, but […]

Read More

blog-post-thumbnail
Paralympic Fencer with Ehlers Danlos – Ranked 10 in World – Hopes to Compete at 2016 Games

Posted on April 24, 2014

This UK teen is destined to participate in the World Paralympic Games in 2016. “TALENTED teenager Piers Gilliver fears his hopes of competing at the Paralympic Games in 2016 will be dashed unless he secures the funding he needs to keep his training on track. Piers, 19, from Drybrook, is currently the 10th-best wheelchair fencer in […]

Read More

blog-post-thumbnail
Evan is a Teen with EDS who “Lives Each day Making a Difference”.

Posted on April 22, 2014

This courageous young man wants to help others with rare and debilitating diseases like his. By Wesley Gardner. “Sitting on the floor of his living room, with family photographs checkering the light yellow walls and Manchester United v. Bayern Munich playing on a muted television behind him, 15-year-old Evan Mundine began to tell his story. He talked […]

Read More

blog-post-thumbnail
Teen with Ehlers-Danlos Publishes Book Alongside Loyal Friend

Posted on April 11, 2014

Kylie and Elizabeth’s novel – 5 years in the making – is now published!  It is an imaginary tale written by a pair whose friendship is proven and real. “It takes a very special person to stick with someone who has gone through what Elizabeth has gone through”, says her mom, Amy Schulze (Co-Leader of the Cincinnati EDS Support […]

Read More

blog-post-thumbnail
Honorary Teammate with Ehlers-Danlos Syndrome Joins The University of Dayton Basketball Team

Posted on March 30, 2014

The University of Dayton Flyers have a “good luck charm” on their team.  Trevin Gray is a 14 year old with Ehlers-Danlos Syndrome who has joined the college team through a program called Team IMPACT. Watch the video news report! By WMCTV.com Staff MEMPHIS, TN – (WMC-TV) – The University of Dayton basketball team faced Florida in the […]

Read More

blog-post-thumbnail
I Have Pain from an ‘Invisible Illness’ called Ehlers-Danlos

Posted on February 21, 2014

Kelly finally received her Ehlers-Danlos diagnosis when she moved to Australia. She shares her story. By: KELLY MCQUINLAN “Looking at me you’d think nothing was wrong. I have what they class as an invisible illness. People often say “but you don’t look sick”. Little do they know how much I can suffer on any given day. I was […]

Read More

blog-post-thumbnail
Health Care Provider Inspires Teen with Ehlers-Danlos

Posted on February 19, 2014

  By: ELLE FARCIC The West Australian An Australian teen with Ehlers-Danlos Syndrome was inspired to become a nurse after many trips to the hospital.  “Brittany Seaton may still be a few weeks off starting her nursing degree, but the 17-year-old already has an intimate knowledge of how hospitals work. The Collie teenager has endured countless […]

Read More

blog-post-thumbnail
Life as a Medical Zebra with Ehlers-Danlos Syndrome

Posted on February 18, 2014

16 year old Sean wrote an article in his school newspaper about his experience with EDS. He did an excellent job describing the impact that EDS has on a teenager.  By: Sean Earley “My name is Sean Earley and I am a Zebra. No, I am not actually a human zebra. I have been living with […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...