Archive for the ‘Parenting’ Category
Posted on January 10, 2014
If you have been following the story about the Huber’s being arrested for child abuse you can relate to this new story in North Texas of undiagnosed bone fractures resulting in a criminal or child custody case. by JANET ST. JAMES DALLAS — “Cell phone video is the only way Darlyn Harrell and Adam Bonham can […]
Posted on December 15, 2013
Emilia has been such a blessing for this family. By Tui Benjamin, Reporter A TEENAGE singer-songwriter is hoping to hit the fundraising high notes by joining forces with a youngster battling a rare medical condition. Emilia Ward, aged 17, has the ‘X Factor’ according to Brandlesholme four-year-old Annabelle ‘AJ’ Griffin, who is now the aspiring […]
Posted on December 12, 2013
Twelve youngsters from the “Children Exceeding Expectations” School will have their entire families joining them at Disney World! This Christmas surprise was made possible through the donations of many, and set up through Children Exceeding Expectations program. By: Tony Casey Press Staff Writer “The Christmas surprises kept coming Sunday afternoon at Bristol Motor Speedway for the kids […]
Posted on December 10, 2013
Ehlers-Danlos Syndrome was discussed on the daytime talk show, Katie. We are providing links to watch the show, and encourage EDSers to add comments to the show’s website. Watch the entire TV episode Click Here. Visit the interactive ABC TV station website, where you can chime in with your comments: Here are 2 video clips from the Katie […]
Posted on December 7, 2013
Emily has learned to deal with the challenges of raising 2 children despite her Ehlers-Danlos Syndrome. By EMMA INNES “A mother has been left devastated by a rare condition that leaves her barely able to cuddle her children. Emily Comber, 31, suffers from a rare syndrome that causes her constant pain and makes her joints ‘pop […]
Posted on November 29, 2013
“Good Morning America” reported about Ehlers-Danlos on Friday, 11/29/2013. We are providing a link to Watch the VIDEO of the TV segment. EDS awareness is one positive outcome of the tragic story about the Huber family’s false allegations of child abuse. Their daughter has been diagnosed with Ehlers-Danlos Syndrome. Click here for this story about the Huber family’s false allegations […]
Posted on November 5, 2013
We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]
Posted on November 3, 2013
The Dream Factory has a great program for children with disabilities. This will be a special vacation for Haley and her family. By: Judy Harrison, Bangor Daily News NEWPORT — Like many girls her age, Haley Grant loves dressing up as a princess. The 4-year-old has slippers, gowns and crowns she regularly dons when she […]
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