Archive for the ‘Parenting’ Category

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Painting is a Great Therapy for Girl 4 with Ehlers-Danlos Syndrome

Posted on April 25, 2014

Artwork provides some comfort for this 4 year old child with Ehlers-Danlos Syndrome. By Scott Fishman, Forum Publishing Group “Nimue Fong Yee, 4, painted for the first time at Young At Art Museum in Davie during its Valentine’s Day event. The following weekend, her grandmother gave her a canvas and paints — she hasn’t stopped […]

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Evan is a Teen with EDS who “Lives Each day Making a Difference”.

Posted on April 22, 2014

This courageous young man wants to help others with rare and debilitating diseases like his. By Wesley Gardner. “Sitting on the floor of his living room, with family photographs checkering the light yellow walls and Manchester United v. Bayern Munich playing on a muted television behind him, 15-year-old Evan Mundine began to tell his story. He talked […]

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“My baby and I are alive … It’s a miracle”

Posted on April 18, 2014

  Many women with Ehlers-Danlos Syndrome have pregnancy and delivery complications. As pregnant Natasha Corrigan lay in a hospital bed, her family were warned that mother and baby may not survive. Natasha, of Witham, has Ehlers Danlos Syndrome (EDS) which means she has joint problems, intestinal failure, a bladder three times bigger than normal, bruises […]

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Judge Reunites Family With Child Affected By Ehlers-Danlos Syndrome

Posted on April 13, 2014

This is another tragic story of couple charged with child abuse due to an Ehlers-Danlos related injury. “It was the type of accident that could happen to any parent – in a split second, a young baby rolls off the bed and falls to the floor. For most, the outcome is a few tears and […]

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Is a Fractured Bone Child Abuse or Ehlers-Danlos Syndrome?

Posted on February 12, 2014

There has been much discussion lately about parents being accused of child abuse when taking their children to the ER with a dislocated joint or fractured bones. By Vincent Iannelli, M.D. “Bone broke, me fix.” “That’s the running joke in medical school about orthopedic surgeons. Of course, there is a lot more to treating broken bones […]

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Trissanna Has Ehlers-Danlos and is Helped by Local Variety Club

Posted on February 2, 2014

This BC Variety Club is a Children’s Charity Helping those in need specifically Trissanna who has Ehlers Danlos Syndrome. by  Carol Aun – Mission City Record “From the minute she wakes up Trissanna Hunter feels the pain in her joints, the cracks in her bones. If she was older, like her grandmother, she would simply she […]

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Hypermobile UK Mum will Give the Singing Performance of a Her Lifetime

Posted on January 30, 2014

Chloe is following her dreams by giving a public performance debuting their first album Songbird. By Rene Gerryts A CHRONICALLY ill mum is to defy the odds by performing her debut album live. Chloe Evans-Lippett suffers from hypermobility syndrome that’s left her wheelchair dependent, in constant pain with hips that dislocate up to 11 times a […]

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Ehlers- Danlos Family is in Dire Need for Health Care Coverage

Posted on January 17, 2014

  Many EDS families are having problems dealing with the  Health Insurance Marketplace.  By JENNIFER SUMMER “Spending hours on the phone talking to various health care representatives was not the way Summerwood resident Sabrina Carr had planned to spend her holiday break with her family. Sabrina, who was diagnosed with fibromyalgia, Peripheral Neuropathy, Myofascial Pain Syndrome […]

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