Archive for the ‘Fundraising’ Category

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Canadian Group Platinum Blonde Helps Fundraise for Ehlers Danlos Treatment

Posted on September 13, 2013

A Canadian singing group is preforming at a fundraising event for Ehlers-Danlos Syndrome.  By Oakville Beaver.    “Famed Canadian group Platinum Blonde will be rockin’ for a good cause at Oakville’s Shakers Tap and Grill tomorrow (Saturday). Organizers of the Improving the Life of Children (ILC) Foundation fundraiser confirmed earlier this week the rockers will […]

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September is National Chiari Awareness Month

Posted on September 2, 2013

We all need to get out and learn more about Chiari and promote awareness in our local communities. “Chiari affects over 300,000 people in the US. Chiari is a serious neurological condition in which the brain herniates through the skull putting pressure on the nerves and spinal cord disrupting the normal flow of cerebrospinal fluid […]

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Konnie Celebrating Her Special Wedding Day with John

Posted on September 1, 2013

 A special day for this couple inspit of her Ehler-Danlso Syndrome and Chiari.  By: Alexandra Bahou “(WXYZ) – The walk down the aisle is an emotional journey for most brides. And for Konnie Tabbert, even more symbolic because the path to her groom, John Jeffire, was paved with many challenges. “I knew that I could love you, […]

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Cerasani is Getting Help From the ILC Foundation in Canada

Posted on August 30, 2013

Cerasani has Ehlers-Danlos syndrome and is getting financial help from the  ILC Foundation in Canada. ByDavid Lea “Organizers of a fundraising event intended to help an Oakville woman living in chronic pain said they need the public’s help more than ever after thieves stole the money they had raised so far for her treatment. The […]

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Gypsy Sue’s Birthday Party Raises Funds for Children Ehlers-Danlos Syndrome Network

Posted on August 27, 2013

During this canine birthday party a  collection was taken by the band members for the Ehlers-Danlos Syndrome (EDS) Network Foundation for children with catastrophic conditions and for the Roofs for Woofs non-kill animal shelter and adoption center. Written by Ann Hall “It may have been the first, but positive comments made by guests indicate it certainly will not […]

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Athlete Refuses to Let Ehlers-Danlos Syndrome Stop Her From Reaching Her Dreams

Posted on August 23, 2013

Claire is an inspiration to all of us.  She continues to compete despite her major struggles.  By Claire Connon I have a complicated medical history which made my life change overnight. I’ve overcome a lot of obstacles to be where I am. In 2004, I had just started university, and joined my college rowing team. […]

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Book Purchases Will Help EDSer Get Mobility Van

Posted on August 20, 2013

You can help EDSer Erika by purchasing the novel entitled “Pearl, MD”. Proceeds will help Erika and her family purchase a van to transport her in her wheelchair! “For the next 60 days, all author proceeds from the sale of Pearl, MD will be donated to the family of Erika Heitman, a 14-year-old girl from Carolina […]

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“Riding Around Australia” for Ehlers-Danlos Syndrome

Posted on August 19, 2013

EDSer Claire Healey is riding her motorcycle around Australia in 35 days.  During this fundraising effort, she will increase awareness by discussing EDS at every stop! The funds she raises will go to the ConnecTeD Foundation. By: Matt Carr “CLAIRE Healey will cover thousands of miles around Australia in a bid to help others battling the condition that […]

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