Archive for the ‘Fundraising’ Category

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Bethany Puts Aside Ehlers-Danlos to Help Others This Christmas

Posted on December 3, 2013

 Bethany wants to celebrate Christmas by raising funds for toys at a local hospital. A LITTLE girl with a rare illness is defying her condition and taking on her own Christmas fundraising mission to help other poorly children. Bethany Hambleton, nine, suffers from Ehlers Danlos Type III – a disorder which means she has to […]

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Students Develop EDS Related Science Project About DNA

Posted on November 12, 2013

BY JOE ROBERTSON The Kansas City Star Teacher, Brittani Wilton’s talk about her genetic disease, Ehlers-Danlos Syndrome, inspired her students to develop a science project about DNA. The judging in the Battle of the Brains at Union Station was supposed to lead to one final winner.    DAVID EULITT | THE KANSAS CITY STAR Leawood Elementary […]

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Poppy Princess Gets Mayor’s Help for Ehlers-Danlos Fundraising

Posted on November 7, 2013

By David Hemming Jodie has hypermobile Ehlers-Danlos Syndrome and uses her poppy appeal to promote EDS awareness. Poppy Princess Jodie Vasquez was given some extra special help for her fundraising appeal this year. Jodie Vasquez “The Carlisle teenager, who suffers from a rare, life-threatening illness, was joined by city mayor Ray Bloxham on Saturday. The […]

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Princess Haley Has Ehlers-Danlos Syndrome and Visits Disney World

Posted on November 3, 2013

  The Dream Factory has a great program for children with disabilities. This will be a special vacation for Haley and her family. By: Judy Harrison, Bangor Daily News NEWPORT — Like many girls her age, Haley Grant loves dressing up as a princess. The 4-year-old has slippers, gowns and crowns she regularly dons when she […]

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10-year-old with EDS Gets Outpouring of Support From Her Community

Posted on October 27, 2013

Zoe is living with Ehlers Danlos Syndrome but has been fortunate to receive help from those in her community aware of her condition and needs.  By Meghan Balogh, Napanee Guide “Zoe Hennessy and her mom Heather headed out of their Roblin home on Saturday morning. Little did 10-year-old Zoe know, it was a ploy to get […]

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Charity Helped 4-Year-Old with Ehlers-Danlos Syndrome

Posted on October 25, 2013

 A fund raising activity is planned for Ehlers-Danlos Support UK. This organization has supported Lewis as he struggles with Ehlers-Danlos Syndrome.   Written byKerry Ashdown “Little Lewis Green, who attends John Wheeldon School, faces an uncertain future because of Ehlers-Danlos syn- drome, a rare genetic condition that affects collagen pro- teins in the skin. Common symptoms […]

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Erika Gets Extreme Makeover to Her Home

Posted on October 22, 2013

Erika Heitman, who has Ehlers-Danlos Syndrome, now has a more accessible home – thanks to the work of the nonprofit organization Welcome Home Angel. By Zach Hanner Breakingnews@StarNewsOnline.com “A crowd of around 40 people gathered at the quaint little cottage on Carolina Beach. They chanted, “Move that lift! Move that lift,” a la “Extreme Makeover: […]

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Nationwide Children’s Hospital Columbus Marathon: Oct. 20, 2013

Posted on October 18, 2013

What an exciting opportunity to promote EDS Awareness with this marathon in Columbus, Ohio! Click here to see Heather at Mile 24 The Nationwide Children’s Hospital Columbus Marathon & ½ Marathon is pleased to announce its field of “Patient Champions” who will represent 24 of the 26.2 miles on this year’s course. Two of the […]

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