Archive for the ‘Fundraising’ Category

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A Teen Struggles with EDS

Posted on May 3, 2013

This brave teen is managing EDS by staying active and managing the pain. “A life sentence of  joint pain is not what any 17-year-old high-schooler wants to hear, but Wilmington Friends School junior Peyton Beard simply considers it her burden to bear. Beard was diagnosed with Ehlers-Danlos syndrome the summer before her freshman year after […]

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Rockford Woman Promoting EDS Awareness for Stevie

Posted on May 2, 2013

Families are working together to promote EDS Awareness during the month of May. By Cindy M. Cranmer “A Rockford woman is doing her part to help work towards education, treatment options and, hopefully, a cure for the disease that ended her stepfather’s life; a disease her half brother, six-year-old Stevie, is now facing. Tom Yasick […]

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Performers helping to Raise Funds for EDSer

Posted on March 5, 2013

By Kathryn Bradley Friends rally to help Carlton Colville woman with debilitating condition Young performers will take to the stage next weekend to raise funds for a talented musician whose promising career was ended by a debilitating genetic condition. Heather Willis, from Carlton Colville, was a keen performer, singer, harpist and flautist before being diagnosed […]

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Fight to be Upright! Charlie’s Campaign for Lifesaving Surgery

Posted on January 22, 2013

Charlie needs a life saving surgery in Maryland.  Many fund raising activities are raising the money needed. Charlie’s Battle with Ehlers-Danlos Syndrome, Cranio-Cervical Instability, and Chiari Malformation. Charlie was born with Ehlers-Danlos Syndrome (EDS), a genetic disorder he inherited from his mother, Christine. Individuals with EDS have a defect in their collagen, the main component […]

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Erika is Doing Better But Still in Pain

Posted on January 20, 2013

Erika is doing much better after a very expensive surgery in Maryland. By Susan Gamble, Brantford Expositor Sunday, January 20, 2013 10:30:40 EST AM ST. GEORGE – Erika Crawford is tired. In fact, she looks exhausted.     “She smiles broadly for a photo op at the local pub in her village, the St. George Arms, […]

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Laura’s “Can-Do” Spirit Persists with EDS

Posted on December 4, 2012

“Lyons received an associate’s degree from LLCC in May. Making the greeting cards keeps her busy and makes her feel useful”, she said. Among cards are ones with sayings ‘Congrats On Your New Job’ (with three-dimensional flowers), ‘Sending Thanks Wishes with Gratitude and Appreciation For You’ and ‘Wishing you all the happiness that your holiday […]

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Laura’s “Can-Do” Spirit Persists with EDS

Posted on December 3, 2012

Laura Lyons has a positive attitude while managing her life with EDS. She has found many ways to contribute using the many creative talents she has. The following are excerpts from an article about Laura that appeared in the Springfield, IL newspaper. “Lyons received an associate’s degree from LLCC in May. Making the greeting cards keeps her busy […]

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Kristin Means Benefit for Medical Funds – and a surprise!

Posted on November 18, 2012

Kristin Means is featured in our www.edsawareness.com Home page video as she is interviewed with Dr. Henderson. Here is an opportunity to thank her for all that she does for EDS awareness. “Kristin Means, 31, with her father George Feracco is thrilled Saturday as she finds out that there is a 2013 Chrysler Town & Country van waiting […]

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