Archive for the ‘Fundraising’ Category

blog-post-thumbnail
EDS Support Group in Lancaster

Posted on June 10, 2013

This EDS Support Group  is promoting EDS Awareness in Lancaster. By EMILY PEIFFER   Staff Writer        epeiffer@lnpnews.com “You may notice something different when you pay for your morning coffee at  Turkey Hill. Donation jars for Ehlers-Danlos Syndrome, a rare genetic  disorder, are now at the checkout counters of four local Turkey Hill  markets. The driving force behind […]

Read More

blog-post-thumbnail
Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

Read More

blog-post-thumbnail
EDS Teen Receives Wheelchair to Compete in Sports

Posted on May 28, 2013

Michael says he wants to inspire others with disabilities to play sports.   Reported by: James Gordon Local 5 TV “ROBERTSDALE, Ala. (WPMI) One teenager’s desire to compete has caused an entire community to come together. Thirteen-year-old Michael Parnell is a student at Central Baldwin Middle School. For the longest time he wanted to play sports. […]

Read More

blog-post-thumbnail
I was Hyperactive, “Overly-sensitive”…

Posted on May 26, 2013

EDSers in  Australia are also promoting EDS Awareness in their communities. by The Shake · Editor Note: I was diagnosed with EDS just over four years ago now. The Internet has been my saviour and this article comes from one of my online readers who found me because of my EDS. I’m delighted to be […]

Read More

blog-post-thumbnail
EDS Surgeries are Rare in Ontario

Posted on May 23, 2013

Jessica lives in Canada and has a difficult time getting the treatment and support she needs.  Her husband Luke is leading the charge! “Hi my name is Luke Covey and I’d like to ask for your help in getting my wife better. Background on my wife Jessica My wife Jessica has Ehlers-Danlos Syndrome (EDS), a genetic […]

Read More

blog-post-thumbnail
Music Night Benefit Helps Jodie with EDS Expenses

Posted on May 21, 2013

Jodie suffers from EDS – type III hypermobility. A benefit event “Music Night in Carlisle” helps Jodie with EDS related expenses. By Emily Parsons Tuesday, 21 May 2013   “Two students have called upon local talent to help raise money in support of a Carlisle teenager. Kat Vevers and Lizzie Brough were inspired to act […]

Read More

blog-post-thumbnail
“We are Laughing, But With Wobbly Knees”

Posted on May 20, 2013

  Debbie Eaton has vascular EDS.  She is finding resources to help her manage this devastating illness. Published in UK Daily Echo “A POOLE woman who describes her body as a “ticking timebomb” has bravely spoken out about the devastating illness which has blighted her life and killed her teenage son. Debbie Eaton hopes to raise […]

Read More

blog-post-thumbnail
Hannah’s Cartoons Improve Communication

Posted on May 18, 2013

Hannah spreads EDS awareness through her creative cartoons. Her Stickman booklets and information cards have enlightened and entertained many readers. They have provided an alternative way for EDSers to express their needs. “Hannah was diagnosed with HMS aged 24, having been symptomatic all her life. She did well in school and university, but a year […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...