Archive for the ‘Family’ Category

Hamilton woman seeks Treatment in the US for a Painful Condition

Posted on January 2, 2013

  Brittinay is another Canadian who is not getting the treatment she needs for her Ehlers-Danlos Syndrome disorder.  She is seeking more treatment in the US. “Brittany Crichton looks battered. Bruises dot the 23-year-old Hamilton woman’s body. She has a pronounced limp. Her shoulders dislocate so often that she puts them back in herself. Clumps […]

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Canadian Teen Seeks EDS Treatment in the US

Posted on January 2, 2013

Brittanay is another Canadian who is not getting the treatment she needs for her Ehlers-Danlos Syndrome.  She is seeking more treatment in the US. “Brittany Crichton looks battered. Bruises dot the 23-year-old Hamilton woman’s body. She has a pronounced limp. Her shoulders dislocate so often that she puts them back in herself. Clumps of her hair have […]

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If Your Child Moans About Sore Legs Dont Assume They’re Just Lazy

Posted on December 30, 2012

Merrily had problems with her joints.  She was eventually diagnosed with Hypermobility, a form of Ehlers-Danlos Syndrome. When Merrily, my ten-year-old daughter, complained this summer that the sole of her left foot was sore, I was surprised to find a large lump in the arch. Our GP put it down to ill-fitting shoes (she lived […]

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What is Ehlers-Danlos Syndrome

Posted on December 5, 2012

“Erica was invited to explain to the whole school about a genetic disorder that nearly killed her a few years ago. It is called Ehlers-Danlos Syndrome (EDS). It is a problem with the collagen in the body so it affects every cell in the body. Every system is affected. She lives in constant pain, more […]

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Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

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My Friends and Family Dealing with EDS

Posted on August 1, 2012

jmurphx has EDS and describes, through her text and music, what it is like for her and her family to deal with this disorder. We hear about her many friends and family with EDS.  She is a brave lady who keeps a positive attitude while helping herself and others manage Ehlers-Danlos Syndrome. Check out jmurphx’s […]

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