Archive for the ‘Conferences’ Category

Canadian medical conference on Ehlers-Danlos Syndrome

Posted on October 13, 2013

Erika helped to coordinate a medical conference on Ehlers-Danlos Syndrome connecting EDS experts with Canadian neurosurgeons, geneticists and pediatricians. On Oct. 12th, experts including Dr. Fraser Henderson spoke to the group. Erika also shared her experiences. By Susan Gamble, Brantford Expositor When Erika Crawford desperately needed a complex operation that was perfected in the U.S. and not covered by OHIP, […]

Read More

Doctor Speaker Series

Posted on September 18, 2013 is excited to be offering this Doctor Speaker Series to our EDS Membership. We are limited in the number of openings so please dial in early (by telephone only) to attend the program. The sessions will be the 1st and 3rd Wednesdays at 9:00 pm EST. Our speaker for September 18 was Dr. Stephane Treyvaud. Dr. Treyvaud is an adult, […]

Read More

EDNF Presentation by Shane Robinson, Executive Director

Posted on August 5, 2013

By Diana Cleaveland, Watch this 4-part video series of a presentation given by Shane Robinson, Executive Director of EDNF, to the New England EDS Support Group on June 30, 2013. The topics include: the past and future goals of EDNF and the EDNF Conference held August 1 -3, 2013. Though the videos are fairly long, there is […]

Read More

EDS Awareness Booth at the 2013 EDNF Conference

Posted on May 11, 2013

Don’t miss the 2013 EDNF Conference in Providence, RI. will be a sponsor again this year.  Stop by our booth to learn more about our free support group program! Here is a summary of the 2012 conference experience: Attendees witnessed several exciting announcements at the 2012 EDS learning conference! It was announced that the […]

Read More

How to get the most out of 2013 EDS conference

Posted on April 30, 2013

In this article, Donna reflects on her past conference experience, and shares tips on how to get the most out of the 2013 EDNF conference.  Suggestions include: bring printouts of the speakers’ handouts to take notes on (in a binder) bring your spouse or family member (encourage them to attend sessions & meet other EDSers) […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...