{"id":5,"date":"2013-03-16T00:20:00","date_gmt":"2013-03-16T00:20:00","guid":{"rendered":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/meetings\/"},"modified":"2020-03-27T23:12:57","modified_gmt":"2020-03-27T23:12:57","slug":"meetings","status":"publish","type":"page","link":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/meetings\/","title":{"rendered":"Carolinas EDS, Chiari and More Support Group Meetings"},"content":{"rendered":"
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“Meet n Greets” established August 2012<\/em><\/h3>\n<\/div>\n<\/div>\n

We will get a chance to meet others who “get it”<\/strong><\/h4>\n<\/div>\n

Our next meeting is:<\/span><\/h4>\n<\/div>\n<\/div>\n

Due to COVID-19, we will suspend monthly meet ups through the spring and revisit the idea for future meetings this summer. <\/span>
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For more event information, RSVP and up-to-date meet ups and events please visit and follow: https:\/\/www.eventbrite.com\/o\/carolinas-eds-chiari-amp-more-4189320393<\/a><\/p>\n

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“Experiencing a physical, mental or cognitive condition can make people feel like they are the only one going through it”<\/p>\n

We are not a typical support group, that’s why we call it “Meet n Greets”. Currently we meet on the 2nd or 3rd Sat. of each month. Locations change regularly.<\/h4>\n

At the meet n greet we will share resources with each other and information to empower ourselves as patients, caregivers and family members living with Ehlers Danlos Syndrome (EDS), Chiari Malformation and\/or related disorders like Intracranial Hypertension, Cranial Cervical Instability, Dysautonomia, Mast Cell Activation Disorders & more.<\/p>\n

The idea is to raise awareness in our community and help others move through this journey for a positive life while provide a relief from overwhelming isolation associated with chronic illness.<\/p>\n

Health professionals or those wishing to refer a health professional to speak during a monthly meeting, please contact me for available dates.<\/p>\n

For more information about this group you can contact us via<\/p>\n

Cell phone call or text:<\/p>\n

704-449-3517<\/p>\n

Facebook: https:\/\/www.facebook.com\/groups\/NCCEGS\/<\/a><\/p>\n

Email: carolinazebras@gmail.com<\/a><\/p>\n

Website: http:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/about<\/a><\/p>\n

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“Its important to remember that even if someones experience is similar to your own, your outcome and needs may be entirely different”<\/p>\n

“Seeing that there are so many people with my condition was a comfort, however,it can be overwhelming when so many are suffering and sharing their dooming stories”<\/p>\n

“Giving medical advice is left to the medical professionals of each individual”<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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We understand that most of us do not like to plan ahead because we do not know how we are feeling at a particular day but try to plan your visit. We are encouraging you to come, you will love it!<\/p>\n

Other ways to Connect with people affected by Ehlers-Danlos, Chiari and related\u00a0 disorders. Get support for pain, diet, GI issues, and more:<\/p>\n

EDS of SC Facebook closed group:<\/p>\n

https:\/\/www.facebook.com\/groups\/edsofsc\/<\/a>
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Big EDS Facebook closed group:<\/p>\n

https:\/\/www.facebook.com\/groups\/152615741473177\/<\/a><\/p>\n

Chiari Facebook\u00a0open group:<\/p>\n

https:\/\/www.facebook.com\/groups\/2207568676\/<\/a><\/p>\n

EDS, Chiari, Dysautonomia, MCAS\/MCAD\/MMAS & more Facebook closed page (my fav):
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https:\/\/www.facebook.com\/groups\/200576390027503\/<\/a>\n

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<\/p>\n","protected":false},"excerpt":{"rendered":"

“Meet n Greets” established August 2012 We will get a chance to meet others who “get it” Our next meeting is: Due to COVID-19, we will suspend monthly meet ups through the spring and revisit the idea for future meetings this summer. For more event information, RSVP and up-to-date meet ups and events please visit […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/pages\/5","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/comments?post=5"}],"version-history":[{"count":28,"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/pages\/5\/revisions"}],"predecessor-version":[{"id":122,"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/pages\/5\/revisions\/122"}],"wp:attachment":[{"href":"https:\/\/www.chronicpainpartners.com\/carolinas-eds-chiari-support-group\/wp-json\/wp\/v2\/media?parent=5"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}